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Showing posts with the label Family

The Art of The Casual Lie

Your friendly neighborhood super advocate is back! This time I have a question. Have we reached a point where it is okay to tell a “casual lie” rather than the truth? You may ask what made you pose the above question. The answer is sad but simple. During a recent follow-up appointment with my pain management doctor, I began talking to his nurse. I have been to the office several times in the last few months because my pain pump needed to be replaced. On this particular occasion, I found it easy to talk with the attending nurse for that day. For privacy purposes, I will not give her name here.  Throughout my appointment, we chatted easily. She asked me general questions about my education and other topics, and I did the same. As the appointment progressed, it eventually came out that I was a disability blogger. I told her about this blog and mentioned that we had a Facebook page. She seemed genuinely interested, so I invited her to like the page and add me on Facebook. Truth be told...

Thirty Years Gone but Not Forgotten; A Letter to My Pop-Pop, My First Best Friend

This Christmas will mark thirty years since the passing of my mom’s dad, or the person I like to call my Pop-Pop. To be quite honest I've been lost in my thoughts for a few days now. Late last year I was presented with the opportunity to become a Florida SAND Fellow. The Florida SAND fellowship has allowed me not only to continue my writing which I have been neglecting for the last couple of years but equally as important, it has allowed me to strengthen my advocacy skills. There have been ups and downs throughout my fellowship but as they say, things happen when they are supposed to. As a result of my fellowship, I finally found the best friend I have been searching for my entire life. Nearly ten months ago on a dare from my caregiver, I approached my now girlfriend Samantha Lebron and started a conversation. I did not know it at the time, but God put me right where I needed to be.  For the longest time, I held a belief that I could never date someone in a wheelchair because of th...

Parenthood & Me

Almost two years ago, I wrote a blog about disability parenthood called "Who Says We Can't Have A Family?"  http://thevoicelssminority.blogspot.com/2013/07/who-says-we-cant-have-family.html  In it, I discuss several issues about being a parent and having a disability. When I wrote the blog, I had just turned 27 and had a different view on life. As I am approaching my 29 th  birthday, my perspective on the world is somewhat the same, but on the disability and parenting issue, I don't know if I still hold the same belief.             In that first blog, I laid out the following arguments: It is natural to want to pass genes to offspring, considering human life is just a blip in the cosmic makeup of things, and all we have are the legacies we leave behind. While I still agree with that argument, I find myself internally struggling with the question. Although I believe disabled people as a group have the right to b...

The Hero Complex

            Being a new disability advocate, I find myself continually plugged into various publications. One publication I get news from is the  American Association of People with Disabilities . Every week they put out a handy newsletter entitled  Disability Weekly . In a recent issue in a segment called  In the News,  they had a story about a mom who wrote a somewhat controversial piece. Her piece was entitled  My Child with a Disability is not My Hero.  As the title suggests, Miss Sarah Sweatt Orsborn asserts that disabled people but disabled children are not heroes. At first glance, even I, the non-politically correct writer, that I was taken aback. However, after looking further into Miss Orsborn's premise, I have to say I agree with her. The premise of the article is quite simple. Orsborn suggests that the term can be more harmful than positive.  From my perspective, as a disabled person, I cannot help bu...

Mental Health and Disability

The last blog I wrote was entitled “The Acceptance Problem.” It talked about an issue that is not often discussed within the disabled community, that of disability identity versus complete identity. Now it is only appropriate to talk about another issue that is not talked about which is disability and depression.         There are a variety of disabilities. There are the obvious types, which can be seen, in physical disabilities. There are also hidden disabilities that impact a person’s learning style such as Asperger’s, Dyslexia or Dysgraphia , just to name a few. However, one type of disability that is not often considered a “disability” is that of mental illness. Whether it is Bipolar Disorder, Schizophrenia, or Depression these can be very debilitating, when one combines these disorders with a physical disability, the discussion virtually stops.        My battle with depression has led me to come to several c...

Who says we cant have a family

  So, it's been about a week or so since I last posted.  Since then, I've gotten older.  I had my 27 th  birthday, which was a quiet one this year.  One of the more unexpected gifts that I got was a  Voiceless Minority  T-shirt. It looks pretty awesome.  I will soon post pictures, thanks to my family for getting it for me.  Speaking of family, it due to recent conversations that family and disability will be the subject of this post.              I am not a psychologist, even though I took a few classes here and there.  However, I do believe it is human nature to want offspring. Our lives are only a blip on the cosmic radar.  It is through offspring that one leaves impressions and legacies behind.  This blog will not discuss how there is an overwhelming number of disabled children in America that need to be adopted, even ...