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Showing posts with the label advocacy

It’s Not A Festive Fourth of July When You Have Hyperacusis By Samantha Lebron

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It is the Fourth of July, the weather is nice with no rain in sight, and the sun has set a few hours prior. You are with friends and family at a local outdoor location to enjoy some fireworks. Before you know it, the sky is lit up with beautiful colors. Then you glance to the side and notice a young child sitting on the ground with their hands covering their ears. You do not think much of it. You figure the fireworks are too loud for them to handle, but what if this were a full-grown adult? Would you think differently? In the above scenario, I would be the full-grown adult covering my ears because I have a hearing disorder called hyperacusis. Hyperacusis is a rare hearing disorder that makes everyday sounds seem unbearably loud, painful, or frightening. The brain perceives sounds as loud regardless of their frequency, whether low or high. For as long as I can remember, sounds have always dictated how I go about my day. I was not diagnosed with hyperacusis until I was 25.  Before my...

Supportive Decision-Making May Be a Reality in Some States, But We Still Have a Long Way to Go By Jason Hahr

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Another week is beginning here at The Voiceless Minority. We hope you had a restful, enjoyable weekend. Now it’s back to the advocacy grindstone. Near the end of last week, we focused on several topics, including AI chatbots and their potential to assist people with autism. We also focused on an initiative put together by Wells Fargo Bank to change the way corporate America thinks about disability. Today, our focus is on something a little different. Last October, Disability Scoop shared an article that was first published in the Portland Press Herald. The article explored the notion that individuals under guardianship frequently lack access to legal counsel. The article defined guardianship for a person with a disability as the legal process that gives someone authority to make decisions for another person, often someone who has an intellectual or developmental disability. In most cases, it’s a parent seeking guardianship of a child once they reach adulthood, but there are many instan...

The Future Looks Bright After Presenting at My First Family Café:, By Jason Hahr

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  It is time to put virtual pen to paper once again. The Voiceless Minority has been silent for the last two months, and we apologize for that. As anyone who is an activist for any cause knows, advocacy never stops. We recognize that our silence over the last two months not only affects us personally, but also significantly impacts The Voiceless Minority as a whole. That being said, let’s transition into today’s post. On June 14th, Michelle Zeman, Samantha Lebron, and I gave a presentation at the 27th Annual Family Café, which told the story of the Voiceless Minority, at least, up until now. For those who are not aware, The Family Café is a Florida-based organization that has held the largest disability resource expo in the United States for the last 27 years. According to their website, The Family Café began in 1998 when a group of parents of children with disabilities recognized their shared challenge in finding the information, resources, and knowledge they required to facilitat...

Finding My Voice: Reflections from the First U.S. Autism Show By: Michelle Zeman

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On April 6, 2025, the U.S. Autism Show occurred in Honolulu, Hawaii. Speakers Michelle Zeman (L) and Martin Slyngstad (R) are standing with Daniel Zimmerman (M) to show off the Proclamation that Slyngstad and Zimmerman received in honor of April being Autism Acceptance Month in Honolulu A couple of weeks ago, I shared that I would travel to Honolulu, Hawaii, to speak at the first U.S. Autism Show. Now that the event has wrapped, I wanted to reflect on the experience and share what that was like.   I was honored to be one of only eight presenters at this event. Standing at the podium and sharing my story was profoundly personal and empowering. It was a chance to speak openly about my journey – through diagnosis, therapy, professional growth, and advocacy – and connect with others through shared experiences.   If you couldn't attend the talk, I shared my journey through several key areas of my life. I started by talking about my experiences before receiving a diagnosis—what life...

Advocates Concerned About New Executive Order That Is Set to Affect the Voting Process, By Jason Hahr

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Image description: Voting stations against a wall. On March 25th, President Trump issued an Executive Order (EO) titled "Preserving and Protecting the Integrity of American Elections." This EO proposes many changes to how our elections work, including voter eligibility, maintaining voter registration lists, vote-by-mail processes, which voting machines can be used, and who is responsible for managing elections. American Association of People with Disabilities (AAPD) is highly concerned that if any aspects of this EO go into effect, voters with disabilities and other marginalized communities will be disproportionately harmed. Already, disabled voters face increased challenges in accessing their right to vote because of policies and practices that make voting difficult. The policies in the Executive Order are voter suppression tactics – policies that make it harder for many Americans to vote. This order comes at a time when Congress is actively considering similar voter sup...

Disability Transportation Crisis In America: Affects More Than Just Providers by Jason Hahr

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   I hope you are having a satisfying Saturday. Although we have made great strides, significant work remains to be done. Yesterday, I posted a blog about Patrice: The Movie . If you haven’t had the chance to read it yet, be sure to click the link at the bottom of this post. On the surface, one may think the movie is just about one disabled couple’s journey to get married, but it is about much more than that. While telling the story of Patrice and Gary, it also highlights the transportation crisis that disabled people face. For most people who have a disability, the inability to access affordable and reliable transportation is a barrier they have to overcome daily. I am lucky to have a support system that can provide me with my vehicle. While I do have to keep up with regular maintenance, I am very lucky because I didn’t have to buy it myself. I am eternally grateful to my parents for their generosity, but I also know what it is like to rely on the paratransit system becau...