The Voiceless Minority

  The simple act of getting dressed in the morning can be a genuine struggle for someone who has a disability. For not only themselves but for those assisting them. Adaptive fashion has made this simple task that many may take for granted much easier. Many recognizable clothing companies have now made it part of their mission to include adaptive wear in their collections. Some notable mentions include Zappos, Steve Madden, Tommy Hilfiger, Kohl's, Target, Victoria’s Secret, and PINK. Adaptive clothing is clothing designed to be more comfortable and easier to use for people with disabilities, injuries, or age-related limitations. These clothes feature modifications like magnetic closures, wider openings, and adaptable fits to address challenges with traditional clothing. The goal is to enhance independence and dignity during dressing and undressing.  In the past, if someone needed clothing tailored to fit them specifically due to a disability or condition, they had to either cre...

 I was born country, and that's what I'll always be. This old Alabama song lyric came to mind while I was researching for this article. For anyone who knows me, it's no secret that I love country music. Still, I prefer city creature comforts over country life, despite my claims to be a country enthusiast. However, my research for this article has given me hope that outdoor spaces may become more accessible to me and others like me in the future. I know nature is going to become less hilly and treacherous, but I mean that camping outdoors may be more accessible than I had previously thought. The rest of this article will outline some key considerations for making your outdoor adventure accessible. I live in Florida, where we're known for Disney World and election headaches, but we also have some pretty cool places. However, when you are a wheelchair user like me, camping is not usually high on your priority list. In an article that was published late last September in ...

Mental health is as important as physical health, but the way we treat people’s mental health needs in the United States, you wouldn’t think that we value mental health. A disturbing study that came out last summer in the Journal of JAMA highlights the poor standing of mental health in our society. The study focused on people who are on Medicaid, i.e., low-income or those with disabilities. While the study found that there were clinicians who “accepted” Medicaid, it found that in the five cities studied, only 15% of providers who were accepting Medicaid were available for appointments. This is not only sad but ridiculous. I am going to open up for a minute and let my readers know that I take advantage of psychiatric and counseling services. I think everyone should do so, especially with all the garbage that life, the universe, and other humans throw at us. I have been using psychiatric services since the age of 18. Let’s just say I wasn’t always as okay with my disability or other as...

One of the biggest misconceptions about disability is that just because one has a disability, one cannot learn. Pieces of legislation in recent history, such as the Individuals with Disabilities Education (IDEA) and the Individualized Education Program (IEP), have mitigated this misconception to a degree but are they enough to break the glass ceiling that society has imposed on disabled individuals as a result of what they have been taught about disabilities in the first place? The term ‘glass ceiling’ is typically used in business settings, and it refers to the final position an individual reaches beyond which they are unable to advance despite having qualifications that make them eligible for higher-level positions. To be clear, this has to do with bias that exists in those environments, not necessarily the policies that are in place. However, for this piece, I will use it about those who have disabilities that have been, or are currently being, educationally stunted by those around ...

  As a journalist, it is your job to always be on the lookout for the next story or trend. I am no different; I am always looking for the next topic to cover on this blog; however, I never thought I would find it while chilling with my dad on a Tuesday afternoon. For those of you who don’t know him, let me quickly make an introduction. My dad is a loving, caring, ornery 63-year-old pain in my butt, but I love him with all my heart. Approximately 13 years ago, he became disabled, and we have grown closer since. Due to the nature of his disability, my dad has changed not only physically but also in other ways as well. He no longer has the attention span to watch a whole TV program or even read an entire chapter in a book. This means he enjoys doing so; it simply means that where you and I can watch a half-hour program in one sitting, it takes tremendous effort for my dad to do so. Therefore, he spends most of his time in his man-cave watching short YouTube clips. They can range from ...

Some people with disabilities require the assistance of a caregiver. Below are some questions you can ask during an interview. Interviewing a caregiver beforehand allows both you and that potential caregiver to get to know one another and see if the care they can provide can meet your needs.  Note, these are not the only questions you should ask during an interview; the questions below are a good place to begin if you are unsure of what you should ask. These questions were transcribed from one of Samantha's YouTube videos entitled "Top 10 Questions To Ask A Caregiver in 2021", which can be found on her YouTube channel called Being Sammy https://www.youtube.com/watch?v=ZPytfu95odc How many clients do you have? Ask this question right away because it will let you know how much time they have to dedicate to your needs. Sometimes, when they have too many clients, it can lead to schedule conflicts, double bookings, and even emotional stress for the caregiver, especially if tha...

“Casting call! Casting call! Calling all actors and actresses. We are looking for someone to play someone with a disability.”  Anyone who knows me knows I'd jump, not literally, unless we are talking about a spasm, if I saw a casting call flyer with the criteria listed above. The sad reality is, crip casting is a thing. Crip casting, for example, happened in the movie The Upside. Bryan Cranston, who I am not denying is a great able-bodied actor, was chosen to play the disabled character Phillip, even though it does not appear as if he has a physical disability himself. The example of crip casting in The Upside is not unusual.  For the most part, disabled characters in TV and film are not portrayed by people with disabilities but rather by the able-bodied community.  Perhaps this is why there are three archetypes of disability. We are either portrayed as someone who needs saving, needs to be cured, or is a villain. Let me further illustrate what I mean. The earlier example...

Did you know that Vocational Rehabilitation (VR) is required to help out with paying for out-of-state services if similar options cannot be found within the state? That’s right, the U.S. Department of Education’s guidance shares what to do when out-of-state requests are made. This also includes requests for postsecondary programs for people with Autism and/or other developmental disabilities. The document states that if a VR recipient is seeking services that fall into their Individualized Plan for Employment (IPE), the agency should accommodate an out-of-state option if there are none available in-state.  I have not personally had any experience working with VR, so I cannot speak on that front. However, I do think that it’s important to note the importance of accessibility. If states do not have programs that fall in their IPE, are those states doing anything to create them? Having to uproot your life to access a program is not an easy thing to do - not just financially, but emot...

Imagine being employed by a large corporation as a person with a disability. Now imagine being told that your absences from work were excused because you needed time to recover from medical episodes. Now…next thing you know, you get fired from your place of employment. This is a harsh and unfortunate reality for those with disabilities. In one case, a previous Walmart employee in Henderson, NC, had five seizures between January and May 2017. The Walmart location knew about her epilepsy diagnosis and was given doctor’s notes. The location promised her that each absence would be excused; however, they did not explain the reason for her absences. Instead, they fired her due to her attendance.  Oh, you thought that was it? Walmart has done this in two other locations in North Carolina.  One previous Walmart employee in Raleigh and Statesville, NC, fired an employee for attendance issues when she had to go to the emergency room as a result of her Crohn’s disease. Another Walmart em...

Did you know that obesity during pregnancy may contribute to their child potentially developing Autism Spectrum Disorder (ASD) and Attention Deficit Hyperactivity Disorder (ADHD)?  This shocked me, too! According to an Australian meta-analysis, obesity during pregnancy was found to be more than double the risk of a child developing ASD, while the risk of ADHD increased by 32%. In this meta-analysis, maternal overweight and obesity before and during pregnancy were studied, and interestingly enough, showed significant links with psychiatric and behavioral problems in children later in life. I was reading this from a Newsweek article, and, of course, I have to practice philosophical doubt, meaning I have to question its credibility. Then I stumbled upon this research article . As a behavior analyst, I find myself curious to look at the data behind this. Lo and behold, the scientific evidence showed up, and my doubts were silenced.  It’s interesting, though, because I would have ...

What does it mean to experience intimacy? Are disabled people even capable of it? These are good questions, and hopefully this post will provide some answers.  There are several types of intimacy one can engage in during a relationship. However, intimacy is generally defined as “a feeling of close connection and deep understanding between two people” (Dictionary.com). For the purposes of this post, we will discuss the following areas of intimacy. Emotional, Physical, Sexual, Intellectual, Spiritual, Social. Seeing that I’m no expert in psychology, having taken only enough psychology classes to earn a minor in College, I will rely heavily on other resources for this piece.  The idea for this piece came about after reading an article in Rolling Inspiration magazine. It talked about how to maintain boundaries and intimacy after someone becomes disabled due to a spinal cord injury. The article, which I will link at the bottom of this piece, prompted me to think about my family’s ...

One aspect of traveling that has not always been disability-friendly is flying. In an article I wrote for this blog earlier this year, I highlighted a prototype of a wheelchair accessible seat on a plane. That post discussed what the future may hold for travel. Today's post will discuss how I envision us reaching our goal and the steps we can take to accelerate our progress. Anyone who knows me knows that I love to travel, but planes are not usually accessible to me. People with disabilities often struggle to navigate the aisle, as I noted in my previous article. We have been permanently grounded up until this point in history. However, one airline may be forced to help us spread our proverbial wings. Late last year, an article written by Michelle Diament for Disability Scoop shed light on the U.S. Department of Transportation finally stepping up and holding airlines accountable for their treatment of people with disabilities. The article, which I will link to at the bottom of this...

                                      Many years ago, I wrote a blog post entitled “Terminology Debate,” which explored the impact of language on society. Well, as they say, evergreen material constantly circles back around. The time has come to revisit the topic of language. We all know President Trump does not pull punches and is not the most sensitive or eloquent person. That being said, this blog has nothing to do with politics; instead, it addresses some insensitive remarks Trump made late last year. He used the “r-word” about former Vice President Kamala Harris. I am not only blaming President Trump for the resurgence of the “r-word; however, it cannot be denied that he has a large following and a great deal of influence. When political figures use such derogatory language, they make it seem acceptable. As an article written for Disability Scoop states, there has been an increase in the ...

  Happy, wonderful Wednesday, everyone. We hope you have enjoyed our recent articles. We would like to thank Samantha Lebron for her honest and raw piece from yesterday about her struggle with Hyperacusis. Your willingness to be so vulnerable is refreshing. We look forward to pieces from you in the near future. Today, we return to the frequent topic of politics. Late last week, the Trump administration removed a rule put in place by the Biden administration that would have ended the practice of paying some people with disabilities subminimum wages. Specifically, the rule would have put an end to sheltered workshops and C-14 certificates. What is a C-14 certificate? Essentially, it allows businesses that obtain one to pay people with disabilities significantly less than the federal minimum wage of $7.25 per hour. Indeed, sometimes workers in these establishments are paid between One to two dollars per hour. For several years now, there have been those in the disability community who...

It is the Fourth of July, the weather is nice with no rain in sight, and the sun has set a few hours prior. You are with friends and family at a local outdoor location to enjoy some fireworks. Before you know it, the sky is lit up with beautiful colors. Then you glance to the side and notice a young child sitting on the ground with their hands covering their ears. You do not think much of it. You figure the fireworks are too loud for them to handle, but what if this were a full-grown adult? Would you think differently? In the above scenario, I would be the full-grown adult covering my ears because I have a hearing disorder called hyperacusis. Hyperacusis is a rare hearing disorder that makes everyday sounds seem unbearably loud, painful, or frightening. The brain perceives sounds as loud regardless of their frequency, whether low or high. For as long as I can remember, sounds have always dictated how I go about my day. I was not diagnosed with hyperacusis until I was 25.  Before my...