The Voiceless Minority

  Imagine that you are a photographer covering a story. You aren't the story's subject - your only purpose is to zoom in, adjust the settings, and click the button. The subject(s) of the photo are the story - they know what to expect and how to respond given the situation. However, you're not in the picture as the photographer - you're just observing. You aren't asked to be in the photo, let alone be involved in the story, outside of clicking the button. You see the final image, and you publish it online, and when people see it, they comment on the people within the photo and the event that occurred. That is what life is like from my perspective of being on the Autism spectrum - I am on the outside looking into neurotypical life.   Growing up, I didn't have many friends. In elementary school, I went to a Christian school. You would be incorrect if you think a Christian school is different from a public school in terms of how friendships are created. There w...

As humans, we crave interaction with others. Indeed. when we don’t have social interaction with other people, feelings of despair and loneliness can overwhelm us. However, in the age of social media have we gone too far? Every aspect of most people’s lives is available for consumption by others now. This may be a new concept to the majority of the world but for one segment of the population, I argue that a lack of privacy is not a new concept. Indeed, it may even be a bigger problem for people with disabilities than their able-bodied counterparts.  Frequent readers of this blog know that I have a disability known as Cerebral Palsy. Cerebral Palsy, for my new readers, is a congenital disability that occurs at birth. It usually occurs during the delivery process; it is not genetic or at least there is no evidence that it is as of yet. There are many forms of Cerebral Palsy and it can affect people in a variety of ways. Some people with Cerebral Palsy have a slight limp when walking, ...

I know I have written a lot about disability advocacy I felt it was time for a refresher/ beginner's guide for those who are reading this blog for the first time and do not know much about disability advocacy. I recommend you read this blog first and then sample my other pieces.  Disability advocacy is a formidable force that has the power to break down barriers, challenge stereotypes, and drive meaningful change in society. It serves as a catalyst for transforming attitudes, policies, and systems, ultimately creating a more inclusive and equitable world. In this blog post, we will explore the remarkable power of disability advocacy, highlighting how it makes a difference and drives change at individual, societal, and systemic levels. Empowering Individuals and Amplifying Voices: Disability advocacy provides individuals with disabilities a platform to be heard, acknowledged, and valued. It empowers them to advocate for their rights, express their needs and aspirations, and particip...

To all my regular readers I want to say welcome back and thank you for your continued support. To anyone reading this blog for the first time welcome, please make yourself comfortable and grab a seat or a parking space for your wheelchair and a beverage and enjoy what is to come. In January 2014 I wrote a blog entitled “Aide Care System; The Hurtful Loop Holes” I have included the link to this blog at the bottom of this piece. That piece discussed a crucial problem when it comes to aide care that people with disabilities still face in 2023, however one area it did not cover in great detail was the lack of funding for aide care waivers. The waiver goes by different names depending on the state you live in. I currently live in Florida. Here the waiver is known as the Home and Community-Based Services Waiver. The waiver in theory like all the other waivers started out with good intentions but to be quite honest good intentions don’t pay the bills. In my previous blog on the subject, I tal...

What does it mean to teach? In simple basic terms, according to the dictionary, it is a verb. It means to impart knowledge of or skill in; give instruction in, and impart knowledge or skill to; instruct to. We all understand the basic definition of teaching. The question is, how do we define teachable moments or teachers themselves? I recently graduated with a Master's in education. Still, my institution told me that I could not get a teacher's certification, according to Pennsylvania, because I was too disabled to teach. At first, this statement, to put it nicely, perplexed me. What did it mean I was also disabled to teach? How could they judge me without allowing me to try? As time has gone by, I have begun to understand their position. I disagree with it, but I understand it now. They look at disabled people in a traditional box. Due to my physical limitations, they could not look past my lack of physical capability and see the great deal of knowledge that I c...

Late last year, I brought up an issue that was not discussed very much in the disability community, disability and mental health. As I thought about this blog, I remembered a recent email that I got, and it inspired me to revisit the issue. In the email was a story about how colleges are flunking mental health treatment.             The article described a young boy, Dan, who had mental health issues and made a wrong choice one night in an attempt to overdose. To summarize, he did not overdose. He was having trouble dealing with a new medication, and once his medicine was adjusted, he was fine. However, his college did not treat him appropriately.             His health center referred him to a hospital, which they should have done, but the administration's actions were incorrect.  Instead of recognizing a student in trouble, they treated Dan as if he wa...

            Being a new disability advocate, I find myself continually plugged into various publications. One publication I get news from is the  American Association of People with Disabilities . Every week they put out a handy newsletter entitled  Disability Weekly . In a recent issue in a segment called  In the News,  they had a story about a mom who wrote a somewhat controversial piece. Her piece was entitled  My Child with a Disability is not My Hero.  As the title suggests, Miss Sarah Sweatt Orsborn asserts that disabled people but disabled children are not heroes. At first glance, even I, the non-politically correct writer, that I was taken aback. However, after looking further into Miss Orsborn's premise, I have to say I agree with her. The premise of the article is quite simple. Orsborn suggests that the term can be more harmful than positive.  From my perspective, as a disabled person, I cannot help bu...

The last blog I wrote was entitled “The Acceptance Problem.” It talked about an issue that is not often discussed within the disabled community, that of disability identity versus complete identity. Now it is only appropriate to talk about another issue that is not talked about which is disability and depression.         There are a variety of disabilities. There are the obvious types, which can be seen, in physical disabilities. There are also hidden disabilities that impact a person’s learning style such as Asperger’s, Dyslexia or Dysgraphia , just to name a few. However, one type of disability that is not often considered a “disability” is that of mental illness. Whether it is Bipolar Disorder, Schizophrenia, or Depression these can be very debilitating, when one combines these disorders with a physical disability, the discussion virtually stops.        My battle with depression has led me to come to several c...

Okay, so usually I don’t write two in a day, but something has been on my mind lately, and the blog I posted earlier wasn’t an original piece of writing. Instead, it was forwarding an inspirational story. So here’s my daily food for thought.        I warn you that this blog may unsettle some, and it may make you uncomfortable. The un-comfortableness will come from the overuse of swear words or a sexual conversation. It might come from looking at “ourselves” (society in general) in the near. Some of you may not like what you see if you are honest with yourself.         I am two and a half weeks away from finishing my Master’s Degree at my school in  Northwestern, Pennsylvania. As I complete this round of my academic work, I am forced to reflect. For the last nineteen years of my life, give or take a semester or two, I have been on the “right path.” We all are required in the end states to enroll in 12 year...