It’s been a while since I’ve written. I’ve been busy and am currently entered
in the Screenwriting Challenge 2013 presented by NYC Midnight. So I’ve been
bouncing around ideas for that. However, I watched a music video today that got
me thinking about an old friend. In turn, that got me thinking about the idea
of disability and relationships. For this blog, relationships are not talking
about friendships but relationships on a romantic level.
I
ended up watching Rascal Flatts “What Hurts the Most,” which is a good video,
and it got me thinking about someone I used to be close to. In this blog, I
will refer to her merely as KB. Those who know me will know the initials, but
since this is being read about the world, I want to protect her anonymity a
little bit. Anyway, what hurts the most got me thinking about all that was left
unsaid between me and this individual and the personal walls and hells I’ve put
myself through. Once I was done having a moment of self-pity, it got me
thinking about a larger concept about disabilities and relationships. Before
one continues, I feel it is essential to place the following video here: I got
the title for my blog. http://www.youtube.com/watch?v=-r9KAU-RKu4
As my one friend said, it is a relatively progressive video which shows that
people of all shape, sizes, race, and beliefs at their core all possess
fundamental needs and desires. That being said, there is a message that I need
to espouse.
As
I’ve termed them, “exceptionalities” are no different, but when you have a
physical exceptionality, it seems as if you struggle more to find a healthy
relationship. This next piece of the blog may be a little uncomfortable to some
readers, but it is the reality of my life and those similar to me.
A
certain amount of physical contact, whether sexual or otherwise, is necessary for
any healthy relationship because words can only communicate so much. Sorry to
keep referring back to music in this blog, but it is like the one band known as
Extreme with their song More Than Words in which the song says, “What would you
say if I took those words away?” http://www.youtube.com/watch?v=UrIiLvg58SY
They emphasize that
words can only do so much. Physical contact is necessary. This is why I hold
the following belief, and I also believe many others who are disabled like I think
that it is tough to date somebody who is more disabled than you if you are
disabled. It may not make sense to one who does not understand the dynamics but
let me give an example. If I were confined to a power wheelchair and the person
I am dating is also confined to a power wheelchair, it is tough to lean over
and give them a hug or kiss. Some individuals overcome these obstacles, but
with my limited mobility, I have determined that it would be impossible for me
to date somebody as disabled as I am. Going along with this, I often find
myself attracted to non-disabled individuals.
No,
I do not know what it’s like to be able-bodied at all, but I do know what it’s
like to be a 20 something individual in my generation. It appears as if a
majority of my age, whether male or female, is looking for a quick fix hookup
type scenario. As a disabled person, I have needs as well, but I do not view
sex the way my generation views it, but I acknowledge that even though I am
physically disabled, I do have desires. One will find that if they ask a
majority of disabled individuals whether they view sex as a casual thing or not,
they will admit that they have strong sexual desires, perhaps stronger than those
of their non-disabled friends. I cannot explain it, but this is just what I
have experienced. That being said, there is a common problem when one has a
physical disability. We often end up being the emotional boyfriend or
girlfriend to someone rather than their actual significant other.
What
do I mean by emotional significant other? I have had many friends in my life,
and I know other physical people who have also been in this situation. Where
are you in friendship with somebody of the opposite sex? In the beginning, you
feel no attraction to them because, unlike popular belief, we do not want to
date everyone we are surrounded by if we have a disability. However, as the
relationship grows, they find comfort in you as a disabled person because of
your perspective on life and your way of looking at things, and they will come
to you with their problems rather than their significant other. This, in and of
itself, would not be a problem except that disabled people are human too, and
eventually, feelings will develop in some cases. When this does happen: I will
use an example from my own life but protect her anonymity; we will call her
Cristina. Cristina and I were friends my sophomore and junior year of
Undergrad. She started working for me as a part of my homework aide staff, and
quickly we saw that we were going to get along. We started hanging out more
outside the work environment. When you work with somebody constantly, as near as
I do with all the people who help me, you will see sides of them that they
don’t show the rest of the world.
Everyone has bad days,
and everyone needs someone to listen to. Well, this occurred with Cristina. She
was having relationship problems, and I was a good friend, or so I thought
until one day she said to me, “You would be the perfect boyfriend except you’re
in a power chair. I don’t know if I could handle it.” This is a legitimate
concern, but I had no attraction to her, so I blew it off. As the days and
weeks went by, however, the interest began to develop. Eventually, we revisited
the conversation, and I said, “A while ago, you said I would be the perfect
boyfriend except for the fact I am in a chair. What did you mean?” She replied
with one of the most hurtful friends that a friend has ever said to me, “I
don’t know that I could be with you because you’re in a chair. It has nothing
to do with you. It’s just your chair.”
First
off, that doesn’t even make sense because of the chair; I may not like it is a
part of who I am. If you cannot accept all of someone, how can you possibly be
with them? Second off, I have heard people equated not like women of color, and
it may be the same, but I do not see it that way. I see it as “I like you, but
there’s something wrong with you, and if you could fix it, you would be
perfect!” That comment from Cristina sent me into a deep reflective thought
period. Or at least that’s the politically correct term for it. It sent me into
a dark period where I had issues accepting who I was and contemplated suicide.
Not cool, but it helped in the end. To end the Cristina story, let me say we
remained friends for a couple of months longer, and she thought she could
handle it, so she led me on. She liked the attention I gave her but was too
afraid to hurt my feelings to say that it wouldn’t happen. I lost a good friend
of mine Sarah Thompson over this. I should have listened to her, and this is my
apology to her. I hope she can forgive me. Back to my point, though.
Persons with disabilities find someone that they are attracted to, and the
attraction is stronger because not a lot of people give persons with
disabilities the time of day in that department. Sad, but true.
The
Cristina example was to illustrate what I’m about to say. Relationships with
persons with disabilities or exceptionalities are not that different. Still,
they do not occur very often because of two reasons: one being the able-bodied
object of affection is afraid of something or another, mostly having to take
care of the individual instead then become a partner or two that the disabled
person’s expectations of their partner.
There
is a small percentage of physically disabled and power chair bound people that
ruin it for the rest of us. They expect the person they are with to take care
of their every need. This means both physical, aka sexually, and physical, aka
non-sexually. Persons with disabilities that small portion anyway sees their
partner as a full-time caregiver and not a partner. This is what society has ingrained
into abled-bodied persons’ subconscious that it will be this way. I am here to
tell you that it will not.
If
a person with a physical disability who is either bound to a manual wheelchair
or a power wheelchair truly cares about an individual, then they will not let
you perform their personal care tasks whenever necessary. We are not that
different from you. We laugh, cry, dream, hurt, we want, we love, and fear. The
only thing that makes us different is our physical needs, and it is not your
job as a significant other to deal with those physical needs.
I
know this blog will not change society’s perception overnight or relationships
with persons having severe disabilities and non-disabled people. However, it is
an issue that needs to be discussed and brought to light. We cannot pretend
that disabled people are not human, and we cannot pretend that attractions do
not occur. It is only through discussion and frank conversation such as this
one that a few souls will change reality for the rest of us. In closing, I must
say that I do look up to those non-disabled people, i.e., Kayte Fry, who, at
one point or another in their lives, looked past someone’s physical presence
and found the human inside their soul. Although we do not speak anymore, Kayte
and I were not directly involved with your relationship with this person; I am
eternally grateful to you for realizing that we are not all that different.
Footnotes:
1.) Collin Raye “Not That Different” http://www.youtube.com/watch?v=-r9KAU-RKu4
2.) Extreme’s song “More Than Words” http://www.youtube.com/watch?v=UrIiLvg58SY
