But They Said it Was “Accessible"

So yesterday was officially 3 months that the blog has been up. The Facebook page has only been up a few days but at the end of yesterday, we had 887 page views on the actual blog and 54 likes on the Facebook page reaching an outstanding 607 people. It is amazing what 3 months of my writing have produced. I have had help from so many people. Emily Ekstrand, Kelsey Waltz, and Haley Larson. I’ve also had help from a great T.V. show called My Gimpy Life. It is this show and certain life events that inspired me to start writing again. Here’s to more success for the Voiceless Minority as we move forward! However, with all that success and cause for celebration, there are still many issues that need to be addressed.

       As I have written before, the Americans With Disabilities Act was signed into law in the summer of 1990. I will not rehash it again what exactly the act covered (if you would like information on that either visit “ada.gov” or my previous blogs). I simply mention the act here because its 23^rd birthday is coming up on the 26^th of July. When I recently asked the question on our Facebook page about whether anyone had future ideas for blogs this response came up…

       Joe Peet commented on July 6^th and he recommended a blog on “real-time access.” Now for those of you who are new to the disability advocacy fight and I do call it a fight. Real-Time Access is an interesting concept. The idea provides us (the disability community) access to things on paper. What it does not do is clearly defined how that access should be presented. Instead, the language is left broad and ambiguous. In short, the language leaves the decision up to human intuition or interpretation. This is all well and good but I think the idea forgot one very important point to consider. The developers of buildings and producers of products, for the most part, aren’t disabled because we are rarely given opportunities to pursue everyday jobs. That being said, what the majority the able-bodied people consider accessible, oftentimes is not. I don’t mean to offend a majority of readers but I’m just being honest. I will give several examples to demonstrate my point. Some of these examples are my own and some come from others.

       As I have said numerous times, I go to a school in the North Western part of Pennsylvania and that school has its flaws like every other school, but it tries to build itself as one of the most handicapped friendly schools, not only in the area but also in the country. Nothing against that school as they are the institution that will grant me my Master’s Degree in December if all goes well. However, I need to suggest a few things. As far as being accessible, most of the campus is, but crucial portions need to be fixed i.e. the giant cracks in the sidewalks that some power chairs and I’m sure manual chairs have trouble navigating over or around. How is it possible the school can spend money on new dorms but not fix their existing sidewalks to make them easy for a large portion of your population? Also, another issue that is prevalent on campus but is also a cross-venue the issue is the placement of the automatic door and elevator buttons.

I have a tremendous fear of elevators. Yes, I said it. Even though I use them any time I want to go anywhere above the first floor. I absolutely hate them. I don’t know why but I think claustrophobia is genetic or something—no, not really, but thanks, mom! Anyway, one of my biggest pet peeves is not having uniformed elevator buttons either in height or type. I am very short when sitting in my power chair. If I were to stand up straight, which rarely happens, the doctors say I would be 5’10. However, that doesn’t help me when I’m sitting down. There are two buildings in particular that I have in mind when I talk about the elevator button placement and height. One building s a good example and one building absolutely sucks.

       The first building has an elevator button cutout where the button protrudes from the wall and is one of the more conventional buttons you see in medical facilities and hospitals. It, in this case, is white and it is raised off the cutout a little bit. I have very limited hand mobility but even I can press this button by myself. If that wasn’t awesome enough, when I get into the elevator I can even select what floor I want to go to by myself. Sadly, this awesome elevator design is very rare on campus and in real life. At least in places that you need to go on a regular basis and not just when you’re sick.

       The other a building that I mentioned before has a button and it is placed in an area, which only the tallest disabled people can reach. Granted, like I said, I have very limited movement in my hands but there are very few people that I know who can use this button by themselves. There are those in manual wheelchairs who have more mobility than I do who are capable but even some of them struggle. The button is set into the wall and does not protrude from the cutout. I have seen this type of design in many places—movies theaters, Dave & Busters, local malls, and etc. I have a question for developers. Why in the world are these buttons in use still? Maybe I’m being too narrow-minded but, does everyone in the world think that disabled people always travel around with an aide who can push the button for them? The sad fact in my experience is that most people do believe that. As I have said as recently as the “Hey, down here!” blog we desire our independence too. If elevator buttons aren’t where we can use them they are useless.

       Another issue that I’ve seen which is a cross-venue issue is the placement of automatic door buttons. For those who are unaware (and I only mention this because the blog reaches international audiences now and some of you might not have an automatic door) but automatic doors can open with the push of a button which makes it easier for people who are slower or with wheelchairs to enter. There are several types of automatic door buttons but what I don’t understand again is why is there not a uniform type of automatic door button? Maybe it is, with the simple fact that, nobody consulted disabled people when they were designing them. However, I think we should start a focus group and ask disabled people how long on average does it take someone in a manual chair vs. someone in a power chair how long it takes to get through a door. Take the happy median and then set the button time for that! Also in that focus group maybe we could ask disabled people what types of buttons are easier for them to operate? I prefer the round, grey, metallic ones that are offset from their cutout. I hate the ones at my campus library (which some of my able-bodied friends have trouble pressing). Finally, before I move on to a new topic let me express one major complaint. What is it with the placement of automatic door buttons?! I am not kidding. I have seen buttons placed behind where the door opens at i.e. my campus library. Or below an average wheelchair height. Not to offend short people, but we are not ALL so short that you have to put the button by our knees. Enough with that rant. Let me get to an even more disconcerting issue.

       I’m a pretty an active individual with a disability. I like to go out and visit theaters or movies. Or even sporting events. A lot of the able-bodied people that will read this might not understand what I’m about to write about but someone, please explain why all the handicapped seating is in B, F, E! On the one hand, I can understand that the developers might do it to prevent people from standing up in front of us, and for that I appreciate it. A word to developers though, you’ve avoided me being blocked by some really tall glad or really robust person, but now instead of seeing the hockey game that I sometimes pay 50-100 a ticket for I only see little ants. In the case of the movies, you guys are getting better. You put us in the middle of the stadium seating, but you often don’t have enough seats around us for friends and companions. And god helps us if there are two people in a wheelchair in our party. Someone’s feet are getting crushed! I can’t tell you how many times I’ve been run over by another person’s wheelchair just because they are trying to back into the movie seat. Now I know you have a limited budget and limited space, but could you at least give us another inch to an inch and a half? So we don’t have to ask the poor lady who just sat down to get up just so we can situate ourselves? Thank you!

       A final issue I wish to bring to the table is that of the organization of the malls and stores. I do not intend to offend anyone in retail but I just have one simple question. Isn’t your job to attract the most customers’ possible so that you can sell us merchandise? Excluding those stores who discriminate based on weight or body type (coughcoughAbercromeandFitchcoughcough). If this is the case, I think you are missing out on a large population! No pun intended. When I say “missing out” I really mean making it difficult for a large population to enjoy an American past time known as “buying shit.”

       I am not a girly guy but I do like to go to the store and browse. One of my favorite stores to go into is Spencer’s. This is not a kid-friendly store but like many other stores, it is not wheelchair friendly either. I get that you have to have enough space for merchandise, but honestly…? Why is it that merchandise displays have to cover every inch of the store? I am not able-bodied but I’ve even seen able-bodied people that do not know each other have to get super intimate each other just to get by in that store. In fact, because of where I sit sometimes I am cursed with running into certain body parts of people that I really do not want to. Spencer’s is not the only store that fails to give any customer walking space. Another store that is one of my favorites has to be Bass Pro Shop. Forgive, me. That’s the redneck coming out. While Bass Pro Shop has a large center aisle for foot traffic, it like a majority of stores, also places the clothing racks way too close together! Every time I go in there my parents or person I’m with end up having to do the one thing I hate to have people do. They have to help me drive through the clothing racks so that we don’t end up buying the whole store. Part of them probably does this because I’m not the best driver, but I guarantee part of them does it because a 26-inch wheelchair base cannot fit within a half inch space without killing something.

       All that being said, I bring up these issues because they would not only benefit the disabled community if they were addressed but they would benefit the able-bodied community as well. I am going to be very blunt for a second and remind you that this is only my view on things, but it is my belief that some people rarely want to go places with people with disabilities because they don’t want to have to deal with inconveniences such as helping their friend. While I disagree with most of this premise, I do agree that wherever inconveniences arise due to the disability can be altered or should be. Wouldn’t giving able-bodied people more walking room (or in the case of movie theaters) wouldn’t more room lead to more satisfied consumers? Just a thought.

       In closing, I turn my focus back to the disability community. We are an active community given the opportunity. We are tired of sitting in the back of the room and we deserve to be on the front line like everyone else. 

It’s Like We Want Our Cake and We Want to Eat it too Without Having to Work For It. Sorry, Life Doesn’t Work That Way!

A disturbing trend inspired me to write this blog. Please note: This blog may offend some of my disabled community, but that is not my goal! The goal is to express the idea that we are a minority that claims to be treated equally, but we cut corners more often than not. Because we cut corners, two things have occurred. People view us with unnecessary sympathy, and people end up taking advantage of disabilities. 

Let me first explain how this blog idea came to mind. I watched The Tonight Show earlier this week. Jay Leno mentioned the following in this monologue; Recently, out of Florida, black market disabled people have been hired to help people skip lines. Initially, I thought it was a story that Jay was making up for a good laugh because it got one. However, upon further research, I found it to be true. Several articles have been written about the issue. Two of which are going to be footnoted below. This blog will address that, but it will also address much more critical issues. 

First off, I think it is rather funny that people are such in a rush to hear, “It’s a small world after all...” sung to you over and over again that they would be willing to give up more of their hard owned money to a disabled person to use the sympathy that society offers them. I mean, really?! How much would it hurt to learn some patience? I mean, yes, these lines are pretty long...but the ride’s not going anywhere! All they are losing out on is their hard-earned money. If you don’t spend enough money at Disney world or places like that in general, why must you need a reason to shove unnecessary money?

Enough about that, and now down to the nitty-gritty of this blog. I am a disabled individual. I have Cerebral Palsy, and I use a motorized wheelchair. So I am privileged enough to skip the lines at amusement parks, airports, and other places. For a while, most of my life, I thought nothing of it. After this recent scandal, I got to thinking. Was Carlos Mencia, right? Carlos is a Mexican American Comedian who makes fun of every individual shamelessly for those who don't know. I am a huge, standup comedy fan. People sometimes tell me I should be a sit-down comedian.

I try, but my speech issues often get in the way. I still make people laugh hysterically with my lobster jokes, etc. Anyway, back to my point. In one of Mencia’s bits (please see the link http://www.youtube.com/watch?v=jQawDUmcdCQ it is hilarious and politically incorrect but it is fantastic, listen to the disabled kids' response to him), he comments about being behind a handicapped individual as he called them, and thinking to himself but not having the guts to say, why do handicapped people get to skip the lines? He was specifically referring to those who were in motorized wheelchairs or scooters. He did not have any beef with those on sticks or crutches. I thought it was hilarious at the time. I laughed my ass off, and people around me didn’t understand why. Let me explain.

Mencia may have a point. Just because we are disabled, do we deserve special treatment? I mean, to be honest, we are sitting on a chair. Our feet do not hurt from standing in line for hours. Do you know who should get to skip the lines? The 80-year-old grandparents with their grandchildren who can barely stand but do it anyway. Not I who has never stood without help a day in my life. Because oh my goodness, what if my finger gets tired from sitting in a 45-minute line? Now some may argue that they are doing it to make it easier for our caregivers and us. To this point, it might be easier to give caregivers more space on and off rides, but what does this have to do with skipping ahead of the 45 other people that paid the same price I did to get in? This principle can also be seen in other places. 

Just the other day at Wal-Mart, I saw an individual, no lie, steal one of those in-store scooters because they did not feel like walking. To put it politely, this person was significantly overweight. I know they were not disabled because I followed them and watched them get out of the scooter to reach on the top shelf to grab a large container of...wait for it...wait for it...OREOS! ...OREOS! This situation got me thinking also. No one ever calls disabled people out on anything because they are afraid to offend them. Like we are some fragile human being that cannot be told off or corrected. Our non-disabled people, and this is an honest question, so afraid of our difference that they fear being shunned by the rest of their peers if they call us out? For being obnoxious or inappropriate behavior? Let me give you an example. I go to college, as I’ve said before, with a large population of disabled people. A majority of these disabled people do not walk around with chips on their shoulders. However, a large portion does and walk around as if they own the university. They will run non-disabled people off the sidewalk. It’s probably happened to you, and none of the non-disabled people say anything to the disabled person. They can be heard muttering to their friends, though. 

What do all these examples have in common? Disabled people come in two varieties, so I’ve found it. Those individuals that are okay with their individuals and those who are bitter about them and use their disabilities to their advantage, i.e., they will skip the line in Disney World. Still, they will complain if not treated equally in the next minute. If we want to be treated equally and taken seriously as a group, we cannot pick and choose what areas of life we are treated equally. You may see skipping the line at Disney World not as a big issue but in places like this that we forcibly set ourselves apart from others. Either we want to step in line with the rest of society or have no problem outside the community, along with having our impressive entrance to the ride. We can’t have it both ways. It is almost like we cannot reach exceptionally far, but it’s almost like we enjoy the special seating we get in life. If you ask any minority, who has fought for equal rights, they will all tell you they never want special seating. They fought t sit among everyone else. Not apart from them.



Footnotes: 
1.) http://b1027.com/wealthy-hiring-disabled-to-cut-lines-at-disney/

2.) http://www.huffingtonpost.com/2013/05/14/skipping-lines-at-disney_n_3275836.html