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Showing posts with the label Personal Care

The Personal Care Crisis Continues: How a Lack of Funding for Home and Community Services Reinforces Larger Problem Within The Disability Community

To all my regular readers I want to say welcome back and thank you for your continued support. To anyone reading this blog for the first time welcome, please make yourself comfortable and grab a seat or a parking space for your wheelchair and a beverage and enjoy what is to come. In January 2014 I wrote a blog entitled “Aide Care System; The Hurtful Loop Holes” I have included the link to this blog at the bottom of this piece. That piece discussed a crucial problem when it comes to aide care that people with disabilities still face in 2023, however one area it did not cover in great detail was the lack of funding for aide care waivers. The waiver goes by different names depending on the state you live in. I currently live in Florida. Here the waiver is known as the Home and Community-Based Services Waiver. The waiver in theory like all the other waivers started out with good intentions but to be quite honest good intentions don’t pay the bills. In my previous blog on the subject, I tal...

Aide Care System; The Hurtful Loop Holes

  So the New Year is just fifteen days old, but already I can tell that this year will be different. That being said, I must write about a significant issue that has consumed my life for the past six or seven hours. Today I was informed by my  personal care agency that one of my care workers could not work due to certain  issues. On the surface, this seems like a non-issue, but it turned out to be quite a large one.             For those that don't understand the aide care system, let me backtrack a little. I'm not aware of whether I have mentioned that I live by myself in previous blogs. I live in a small college town in the Northeast, which has a college that caters to physically disabled individuals; however, college services are only available if you live on campus. For the past three years, while completing my graduate work, I have chosen not to live on campus. Along with that choice comes several challen...

Supposed Hero: Not Really, I’m Just Rolling with the Punches--Literally Rolling

So this blog will have no footnotes, no scholarly research. It comes about as a result of the conversation I had today. While enjoying the sunny weather, let me first say that even in Edinboro, Pennsylvania, sunny days are rare in the summer. It is nearly the latter half of May, and we just had snow a couple of weeks ago. So when it is sunny out, I must take the opportunity to enjoy the weather. I was doing so earlier today when a not very unique occurrence happened.  I met this gentleman named Dan. He was fishing for bluegill in a very muddy Edinboro lake. He was overall a nice gentleman, and we chatted about the outdoors and hunting, feeling in particular. Then we got more into detail about what people do. He asked me where I live, and I told him that I live in an apartment building right up to the street. He then asked me if I was from the area. I responded with, “Hell no! I hate cold weather! I’m originally from Florida but grew up in North Carolina and Maryland.” As most do ...