Moving Along

            It’s funny what you find on the Internet. It’s been a while since I’ve written anything because I’ve been busy reading and writing a book, but today I came across something noteworthy. As many of you know, I recently graduated with my masters who have followed this blog. You may not know that I have been planning to move from my Pennsylvania home to a home in Florida.

            The home is currently being built, so as far as a physical structure, I will have an accessible place to live, but moving is never simple when you are non-disabled, much less when you are disabled. Because I require so much physical care, I use at home health services to provide that care. I use these services to avoid going into a group home or a nursing home. These services fall under what is known as home and community-based services.

            As of today, there are no uniformed national standards for home and community-based care services. Each state can set its criteria as to how to dispense these services. Why is this a problem, one might ask? Under the current system, the way services are proportioned only accounts for disabled individuals who want to stay near their hometown or area they live in currently. There is a significant gap between uses if you are a disabled individual moving from place to area. This can present a problem because it does not view disabled individuals as people, but rather as fixed pieces on a chessboard that stands still. Disabled people have just as much desire to grow and explore the world as everyone else. However, there is hope on the horizon.

            In an article found in Disability Scoop, Michelle Diamante outlines possible hope for people who use community-based services. She details what is currently know about the impossible senate bill from an Iowa Senator to improve community-based services. While the article does not include many details about the account, Diamante does quote the senators senior aide as saying “(Harkin) is currently looking at developing legislation that would enhance community access, inclusion, and support to ensure that all individuals with disabilities can receive home and community-based services and supports in their towns, cities, and neighborhoods throughout America.” All of this came about as a result of a report/study by the senator’s office, in which Senator Harkin found” Chairman Harkin’s 2013 investigative report‎ showed that the integration mandate of the ADA, reinforced by the Supreme Court Olmstead ruling, still is not being met across the United States”. To better understand this quote, let us look further at the Olmstead ruling of 1999.

            To begin with, the Olmstead case had to do with two women in Georgia. They were voluntarily committed to a psychiatric wing of a hospital. The women had both mental and developmental disabilities. After their initial psychiatric treatment was complete, it was determined that they should be moved to a community-based program, rather than be confined to a nursing home or institution. Unfortunately for them, both remained in the hospital for several years until they filed suit under the ADA in 1999 for release from the hospital.

            This case was critical because it determined, where appropriate, community-based services should be sought over institutionally based services for people with disabilities. The senators’ proposed bill may provide hope for increased funding and fewer gaps in care for people with disabilities, but only time will tell.

 

http://www.disabilityscoop.com/2014/05/19/senator-strengthen-disability/19374/

http://www.ada.gov/olmstead/olmstead_about.htm

IDD: Call To Action

I don't ask for very much action very often, but this is a good cause that my dad forwarded me earlier this week. Please read the letter below and if you are so inclined, join the fight to give people with disabilities opportunities just like everyone else. Thank You!


Dear Best Buddies Supporter,

Last week, a landmark agreement was reached between the Justice Department and Rhode Island, which will serve as a precedent for years to come and bring a much-needed change in the other 49 states. Click here for the article:http://mobile.nytimes.com/2014/04/09/us/developmentally-disabled-get-more-workplace-protections.html?referrer
Doors once closed will begin to open for people with IDD to move forward as contributing members of our vital workforce. Best Buddies is poised, at the forefront of the supported employment movement, to maximize the opportunities for people with IDD across the country.

Anthony K. Shriver visits
Best Buddies Jobs participant
Arjun Hemphill at the Audi of America Headquarters.
For over 25 years, Best Buddies International has focused its efforts on including individuals with intellectual and developmental disabilities (IDD).
With the unemployment rate for people with IDD at 76%, we must work to engage this group of workers. Today, our Best Buddies Jobs program has expanded to eight cities in the U.S. and is now launching in several cities throughout Latin America, the Caribbean, and Asia. The goal of our employment program is to continue our mission of inclusion in the workplace so that people with IDD can share the same benefits as any work and experience the joy of being a contributing member of our global workforce.
People with IDD are enormously talented, loyal, hard-working, and driven individuals who can contribute to the workplace. Individuals with IDD are making significant contributions every day to businesses small and large; they change the landscape of corporate cultures positively. Their skills and abilities can't be overlooked any longer.
I challenge corporations worldwide to hire people with intellectual and developmental disabilities. With outstanding resources and proper support, it is an ideal time to invest in this incredible group of people to assist in growing revenue, improving customer relations, and effectively managing your operations.
Don't miss out on hiring this skilled, talented pool of workers. Please join me in supporting the work of Best Buddies Jobs and fostering a bright future for people with IDD to secure rewarding jobs, live on their own, become inspirational leaders, and make life-long friends.


With gratitude,




Anthony K. Shriver
Founder & Chairman, Best Buddies International

All We Want is Opportunity: We are Not Asking for Special Treatment

It's funny how to blog ideas come into my head. For those of you who have been following the blog, you will notice that I haven't written in a while. Sometimes, as a writer, you find that there are words inside you that you cannot even know needed to be put to paper until a series of events occur. For me, this blog came about because of three things: A conversation with my friend Josh, who is about to graduate, on how difficult growing up and preparing for the real world is, the fact that I just applied for my first "big boy" internship/ job and finally an article on Autism. One may ask, what do these three things have in common? By the end of reading this, hopefully, this will be clear.

         As a person with a disability, there are always obstacles in front of you, whether your disability is hidden or visible. Some of these obstacles are bigger than others; some relate to social situations, while some relate to other aspects of life. That being said, no matter what one's disability is, I believe that we all encounter tremendous obstacles in the job market. Currently, in the U.S, according to Disabledinaction.org, there are approximately 51.2 million Americans that have some level of disability. Also, according to this website, 32.5 million Americans have a severe disability. If we subtract the number of children, which is 4 million ages 6-14, we can safely estimate that 47.2 million disabled Americans can feasibly work. I know that this seems like a lot of statistics and that I am evaluating here, but if we note an approximate unemployment rate of 13.7% according to Disabled World that equals 6.6 million people with disabilities who are unemployed. This does not seem like a large number, but it is double the unemployment rate compared to the general population. The question must be raised, what is the cause of this?

         Although I am young and have little experience in the workforce, when someone tells me that people with disabilities at 13.7% are twice as likely as non-disabled people to be unemployed, something is alarming. The non-disabled rate of unemployment is 6.7% of the able-bodied population. This is according to the Bureau of Labor Statistics. What causes the discrepancy? Is it because people with disabilities are not qualified? Do they not have the higher education necessary to succeed? The answer is that they do, but it is societal barriers and perceptions that have caused this significant gap in unemployment. 

         As a disabled population, we have benefited from legislation such as the Americans with Disabilities Act of 1990, and IDEA (Indivuals with Disabilities Education Act), whose latest manifestation was 2004. However, these pieces of legislation can only go so far. If people are unwilling to look past the disability, whether it be intellectual, physical, or otherwise, all parties involved will suffer. There is hope, however.

         One company, in particular, is focusing on a specific segment of the disabled population.  SAP, an international computer and technology company, leads the way in something that should have already been a long time coming. SAP recognizes that people with disabilities have unique gifts. To quote the article, they do not see hiring people with disabilities as "charitable outreach" but rather as a "smart business decision."  SAP is explicitly focusing on individuals with Autism and Aspergers, as they, for the most part, have greater attention to detail than others. The company is not cutting corners when they hire individuals with Autism. The individuals undergo a rigorous screening process to see if they fit in with the company and community. Autistic employees must have the same level of higher education as all other employees, so no special favors are given.        

         This company's unique approach got me thinking. While I am encouraged that this company is taking a significant step to improve people's lives with disabilities, it also saddens me that it has taken for this to happen.  I have been a victim of the negative view of disabilities in employment and pursuit of advancement. Although they are a terrific institution in general, the school from I received my master's degree in education did not see my disability as a positive when it came to student teaching. Instead, they focused on the negative and all parties involved suffered. I was able to complete my master's degree but did not gain the necessary experience to the student; therefore, I am still unemployable.

         It is clear that having a disability, no matter what it is, is an obstacle that a person has to overcome. The workforce may often be a challenge for people with disabilities. Still, because of companies like SAP and their unique view on autistic employees, there may be a light at the end of the tunnel when it comes to disabilities and employment. SAP is leading the way and breaking down barriers when it comes to working. Other organizations and institutions should use SAP as a clear example when addressing individuals with disabilities. Just because we are different in one way or another does not mean we are less capable. We are only less capable if not allowed to prove ourselves as individuals.

         Recently, I have applied to my first "big boy" job with an online newspaper, and they are in the process of reviewing my resume and qualifications. At no point in time did this company look down on my disability as a negative. In fact, in some aspects, they have indicated that it may be optimistic. It is unclear whether I will get the job, but that is not my point for mentioning it. If disabled people are given opportunities to prove themselves just like everyone else, it is amazing what society will find, and what resources they will tap into. 

Footnotes

1. http://www.bls.gov/news.release/empsit.nr0.htm

2. http://www.disabledinaction.org/census_stats.html

3. http://www.disabled-world.com/disability/statistics/twice.php

The Move

       It has almost been a year since The Voiceless Minority started. At that time, we have published nearly 50 blogs here on the blogger website. 
       As the New Year begins for The Voiceless Minority, it is time that we make a move. We are moving our web address and hosting over to word press. The new address will be: http://thevoicelessminority.wordpress.com/
       Nothing about the blog will change content-wise; the only thing that will change is the look and the usability of the blog. There will be an archive section for those of you who haven’t got a chance to read all the old blogs on the blogger website. There will also be a contact page and a discussion page so that those in the community or those interested can interact with one another. Please post resources or questions you may have! 
       Finally, we hope that this move will allow the Voiceless Minority to connect with those who read it easily. Apart from my traditional blog posts with our new host, we will also post things and videos. We will experiment with video podcasts with me, Jason Hahr, so you get to know the writer behind the Voiceless Minority. 
       I want to say a quick thank you to those who helped me at blogger and those who helped me design the blogger webpage. I am grateful for your year of service and help, and I hope that the next year will be just as successful as the previous one. Thanks! -Jay

We Are Athletes Too

This past February marked an event in sports that brought the world together. There are very few of these. Even though sports is a universal activity in almost every country, only two events tend to get the world together and stop the fighting; they are The World Cup in soccer and The Winter and Summer Olympics. Every four years or so, these events take center stage, and everybody forgets about the drama going on in the world for a couple of weeks, but there is an event that also occurs every four years that many people are not aware of.  

Every four years at the same site as either the Summer or Winter Olympics, there is another sporting event. It is known as the Paralympics. It is not only sad that the rest of the country does not keep up with such Paralympics activities such as hockey in the winter and basketball in the summer, but it is also sad that the United States is the worlds leading supporter of disability rights but has very little support for its disabled athletes.

This time the Paralympics are in Sochi as were the Winter Olympics. For the first time this year, the NBC family of networks presents an unprecedented 54 hours of coverage of the Paralympics. While the “able-bodied” Olympics drew a record audience in February, the Paralympics are living up to low expectations and not drawing nearly as much of an audience. In the United States or worldwide, credit must be given to other nations as their margin of support is much greater than that of the United States. This is sad for me because I recently graduated from a school that promotes disabled individuals; they even promote a small contingent of disabled sports. So I guess it hits me more challenging than most who will read this, but I must raise a question.  If we are the world’s leader on disability rights, and we do not even support disabled athletes, what does that say about our treatment of disability in this country at all? Just some food for thought. We are not our disabilities, but we are people and athletes just like everyone else.

The Paralympics close on Sunday, and we will have to wait four years for the cycle to repeat itself as far as winter sports are concerned. However, in 2016, the Paralympics summer games will be held. It is my hope by then that disabled sports are brought into the 21^st century and given the respect and support they deserve, but I doubt that will happen.

 

For further reading or information, please visit http://www.teamusa.org/

Teachable Moments, We can be Teachers Too

What does it mean to teach? In simple basic terms, according to the dictionary, it is a verb. It means to impart knowledge of or skill in; give instruction in, and impart knowledge or skill to; instruct to. We all understand the basic definition of teaching. The question is, how do we define teachable moments or teachers themselves?

I recently graduated with a Master's in education. Still, my institution told me that I could not get a teacher's certification, according to Pennsylvania, because I was too disabled to teach. At first, this statement, to put it nicely, perplexed me. What did it mean I was also disabled to teach? How could they judge me without allowing me to try? As time has gone by, I have begun to understand their position. I disagree with it, but I understand it now.

They look at disabled people in a traditional box. Due to my physical limitations, they could not look past my lack of physical capability and see the great deal of knowledge that I can pass on to others. They were afraid to go to bat for someone so different, even if they had great knowledge to pass on. I've also changed my perception of what a teacher is in general. Yes, a great deal of teaching occurs in the classroom, and eventually, that is something I want to do. However, I have learned that disabled teachers can exist, and often they have greater mobility than traditional teachers.

Until society and those in higher education stop putting disabled people in a box, we need to take ourselves out of that box. For the time being, we might not b able to be traditional classroom teachers, but every disabled person has a story to tell and lessons they can teach those around them. Often the most powerful learning occurs outside the classroom, not in it.  Disabled people in general and society need to expand their definitions of a classroom and realize that there are teachable moments every day in the life. You can teach your aides, and they can teach you. You can lead a stranger on the street and change their life forever. To do so, there are a few necessary components, none of which involve the traditional four walls of a schoolhouse.

To be an effective teacher with a disability, one needs first to understand themselves and their limitations. Second, they need to view events in their lives as having a purpose, even the small and bad ones. Third, they need to find their outlet. Mine happens to be writing at this point; others might find their outlet in other ways. However, one finds their outlet; it is essential to develop it. Finally, for disabled people to be effective teachers, we need to not give in to what society says it has mandated for us. If we develop our voice and tell our story and it touches one person, we have been influential teachers.

Traditional classroom teachers and teachers who teach online are often knowledgeable about content. With the way teaching is now, they have minimal opportunity to bring their experience into the classroom. It is those teachers that do so that turn into great teaches. Disabled people have a leg up on the second crucial teaching element that great classroom teachers excel at. While some of us, hopefully, myself included, will eventually be a classroom teacher, disabled people must look for unique teaching opportunities until society realizes that we can be teachers in the traditional sense just like everyone else. These traditional opportunities may include writing a blog like this one, teaching a class online, or just having a conversation with someone who asks a question about disability. Whichever way you choose to be a teacher, it is clear that we need more disabled teachers in this world because there is so much we learn daily from one another. Why not be a part of that conversation if you have a disability?

The Protection Complex

What does it mean to teach? In simple basic terms, according to the dictionary, it is a verb. It means to impart knowledge of or skill in; give instruction in, and impart knowledge or skill to; instruct to. We all understand the basic definition of teaching. The question is, how do we define teachable moments or teachers themselves?

I recently graduated with a Master's in education. Still, my institution told me that I could not get a teacher's certification, according to Pennsylvania, because I was too disabled to teach. At first, this statement, to put it nicely, perplexed me. What did it mean I was also disabled to teach? How could they judge me without allowing me to try? As time has gone by, I have begun to understand their position. I disagree with it, but I understand it now.

They look at disabled people in a traditional box. Due to my physical limitations, they could not look past my lack of physical capability and see the great deal of knowledge that I can pass on to others. They were afraid to go to bat for someone so different, even if they had great knowledge to pass on. I've also changed my perception of what a teacher is in general. Yes, a great deal of teaching occurs in the classroom, and eventually, that is something I want to do. However, I have learned that disabled teachers can exist, and often they have greater mobility than traditional teachers.

Until society and those in higher education stop putting disabled people in a box, we need to take ourselves out of that box. For the time being, we might not b able to be traditional classroom teachers, but every disabled person has a story to tell and lessons they can teach those around them. Often the most powerful learning occurs outside the classroom, not in it.  Disabled people in general and society need to expand their definitions of a school and realize that there are teachable moments every day in life. You can teach your aides, and they can teach you. You can lead a stranger on the street and change their life forever. To do so, there are a few necessary components, none of which involve the traditional four walls of a schoolhouse.

To be an effective teacher with a disability, one needs first to understand themselves and their limitations. Second, they need to view events in their lives as having a purpose, even the small and bad ones. Third, they need to find their outlet. Mine happens to be writing at this point; others might find their outlet in other ways. However, one finds their outlet; it is essential to develop it. Finally, for disabled people to be effective teachers, we need to not give in to what society says it has mandated for us. If we develop our voice and tell our story and it touches one person, we have been influential teachers.

Traditional classroom teachers and teachers who teach online are often knowledgeable about content. With the way teaching is now, they have minimal opportunity to bring their experience into the classroom. It is those teachers that do so that turn into great teaches. Disabled people have a leg up on the second crucial teaching element that great classroom teachers excel at. While some of us, hopefully, myself included, will eventually be a classroom teacher, disabled people must look for unique teaching opportunities until society realizes that we can be teachers in the traditional sense just like everyone else. These traditional opportunities may include writing a blog like this one, teaching a class online, or just having a conversation with someone who asks a question about disability. Whichever way you choose to be a teacher, it is clear that we need more disabled teachers in this world because there is so much we learn daily from one another. Why not be a part of that conversation if you have a disability?