Patrice The Movie Makes Me Wonder If Marriage Equality Will Ever Exist for All People, Including Those with Disabilities. By: Jason Hahr
Okay, enough
with inflating your head as you are reading this. Now, down to the fun stuff.
Last September, Patrice: The Movie premiered at the Toronto Film
Festival. Shortly after, in October, it premiered on HULU. I will link an
article written by Amy Kuperinsky for Disability Scoop that outlines the movie's
plot in greater detail. However, I still recommend that you watch it for
yourself. Recently, I watched it, and it inspired me to write this blog about
the movie and other important tidbits that affect me personally.
The movie centers
around a 60-year-old woman named Patrice who has Cerebral Palsy and her desire
to marry her boyfriend and best friend Gary, who is 58 and also has Cerebral
Palsy. Unfortunately, because of our ableist society, Patrice and Gary, who are
funny as hell, soon realize that they are not legally allowed to get married
without jeopardizing their medical benefits, which Gary points out that he must
have to live.
If this
movie had come out three years earlier, I would have only viewed it from an
advocacy standpoint. However, in addition to God's sense of humor, it should be
noted that he also has a good sense of timing. Anyone who knows me or follows
this blog knows I have been in a relationship for almost three years. I never
thought I would find anyone that could put up with my goofy ass. Still,
luckily, I found a gimpy love bug named Samantha Lebron, who is either crazy or
just as weird as I am, who has decided to put up with me for the foreseeable
future. Thanks, babe. All jokes aside, I love you and love what we have
together, and I could not imagine life without you.
Due to my
relationship with my love bug, I am just as invested in the future of
disability marriage equality as Gary and Patrice are. As they say during the
movie, disability rights are human rights, but currently, I am not allowed to
get married to my girlfriend without losing vital benefits. Now, don’t get me
wrong, some disabled people have chosen to say, as Gary puts it, “fuck that
shit” and do it anyway. To those couples, I commend you. It's not that I’m not
as brave as you; I just don’t know if I could live without my aide care.
In the
movie, Patrice and Gary, along with their friend Elizabeth, campaign for a
piece of civil rights legislation that would eliminate the marriage penalty for
people with disabilities. (This is a real piece of legislation; I can’t find
the title.) By the movie's end, it is clear that Patrice and Gary will be
together forever, but unfortunately, the act hasn’t passed yet. The movie came
out in 2024. Does anybody who has seen the movie recall the name of the
legislation they are campaigning for? If so, do you know whether that
legislation is still in limbo?
As a final
thought, I echo a question asked in the movie. How does it make sense to pay a
benefit for two people who need care when they are not married but eliminate
that benefit when they are? Their care needs don’t change just because they are
in love. This thought process shows me that, as I have written in my last few
blogs, we live in an ableist society. I don’t understand how, in 2025, we can
have television programs like Love On the Spectrum or other shows
depicting disability and love but pretend that disabled people aren’t people as
soon as we turn off the television. Does anyone have a satisfactory answer to
that question, because I haven’t found one yet.
I will leave
it there for now. I eagerly await your comments and thoughts on this topic.
Until next time, your perplexed, but still friendly neighborhood super
advocate, Jay.
The
following are links to the articles referenced in the above piece:
Disability
Scoop Article: https://www.disabilityscoop.com/2024/10/01/couple-could-lose-everything-if-they-get-married-new-film-reveals-painful-journey/31092/
The
Voiceless Minority Article From 2013: https://thevoicelssminority.blogspot.com/search?q=i+can+write+but+it+is+time+for+you+to+react
Patrice: The
Movie Take Action to ensure equal marriage opportunity for all.
Love your article and after some research I think I found the piece of legislation you’re looking for. Congressman Valdao has taken the helm trying to remove the penalty. https://valadao.house.gov/news/documentsingle.aspx?DocumentID=1782
ReplyDeleteThanks for the support and the great information. I'm glad you were able to find it. I will share it on our social media pages. Jay.
Delete