The Third State Has Risen: Literature Foreshadowed It and Now We Are Living It

Whether this blog goes “viral” or even gets read by anyone else is not why I am writing it. Usually, I write to inform or to educate and maybe I will do both with this piece as well, but this time I am writing out of disgust anger, and fear. If anyone asks, I am not shy about giving my opinion about something, and most of my opinions on almost every issue tend to gravitate towards the middle or the left of the political spectrum, but for this issue, I am sure I will piss off some of my regular allies when I say, “what the hell America?” There is a difference between being accepting of others and sanitizing language to erase History and an entire culture’s identity. 

When I originally heard about the change of the name of the agency that runs the program that provides my support services from “the agency for persons with disabilities”, to “the agency for persons with unique abilities” I was angry just like many of my colleagues within the disability community are. That has not changed even though I am writing this blog piece/letter many weeks later. What has changed is the way I view the overall issue as the climax of an issue that has been going on in America since before I was born. 

I believe that the sudden push by those outside of the disability community to erase the word “disability” from the dictionary is the latest and greatest attempt from the third state to erase individuality from society. You might be asking yourself, why do you say that? The rest of this blog will attempt to provide an answer to your question. 

In 1931 Aldous Huxley wrote a little book you might be aware of entitled “Brave New World.” For many Americans, this was required reading material at some point in their primary education. For those who aren’t familiar with the book or weren’t raised in America, I will attempt to summarize the basic idea behind the book. Huxley’s book depicts a Godless world where feelings are suppressed by pills, and nobody is forced to deal with the realities of life. The following quotes encapsulate this idea. 

“And if ever, by some unlucky chance, anything unpleasant should somehow happen, why, there’s always Soma to give you a holiday from the facts. And there’s always Soma to calm your anger, to reconcile you to your enemies, to make you patient and long-suffering. In the past, you could only accomplish these things by making a great effort and after years of hard moral training. Now, you swallow two or three half-gramme tablets, and there you are. Anybody can be virtuous now. You can carry at least half your morality about in a bottle. Christianity without tears- that is what Soma is.  

“Ford we are twelve; oh, make us one’.

Even though Huxley’s book was written 92 years ago it is scary how accurately this book foreshadowed life today. America is now a society controlled by a silent “third” state which infiltrates all facets of our lives including telling us what and how to feel. The latest assault on language is just another way to continue the same campaign of attempting to erase all individuality from the world. Don’t believe me? Here’s further proof.

The assault on language started several years ago when they pressured a football team in the NFL to change their name from “The Redskins” to “The Commanders.” I’m not trying to come off as a racist, I’m just saying, why did the Redskins have to change their name while the Florida State Seminoles' name has been unchanged? In another example, two country music groups changed their names to get rid of their ties to the South. Again, I am not saying that everything that occurred in the South back before I was born was right or just, I am arguing that by changing something’s name to make it sound better or to make a group feel better, we diminish the fact that it happened. Even though our history has dark periods in it, if we do not acknowledge them, aren’t we destined to eventually repeat them? 

You may be asking what history and language have to do with one another and in particular, your argument about the “third state?” My answer is simple. The current push to change the terminology used to describe the disability community is an attempt to diminish or erase their history and culture. I do not say I have a disability; I say I was diagnosed with a disability but there are others in the community who use the term person with a disability to describe themselves. In short, I ask what gives any outsider the right to define a group of people when they do not belong to that group. The answer is simply this. The third state does not want us to define ourselves, rather, they want to tell us who we are or who we should aspire to be. 

In closing, this blog may at first seem less concise than my previous pieces but upon further examination, I believe you will find that not only do I make a good argument about disability and language but that like Mr. Huxley and myself, you should fear what the future holds for us all. 

I Am An Adult Even Though It Is Hard To Believe So Please Start Treating Me Like One

People with disabilities are often infantilized even by those closest to them. 

I am 37 years old but sometimes I feel like I’m twelve. I am currently reading a book with my girlfriend Samantha who I affectionately refer to as my “little alien.” The book is entitled The Woman In Me by Britney Spears. Spears’ memoir talks about her early life as a performer and how much she enjoyed it but it also talks about the conservatorship she was under for thirteen years. During the conservatorship, every aspect of her life was controlled by others. My situation is not as severe as Ms. Spears's, but I can sort of relate to her on some level. 

For those who are new readers of this blog, you may not know that I have a disability known as Cerebral Palsy or CP, or as I like to call it, T-Rex syndrome. I know some people in the disability community will read this and not like the self-deprecating language I use to describe how cerebral palsy affects me physically. Notice how I didn’t say how my “disability” affects me that is due to a change in my mindset that occurred rather recently.  Those who know me know that I’m not the type of person to make a habit out of using politically correct or sanitized language. That being said, I do not believe I am disabled by my diagnoses. I only have “a disability” because society says I do. In a recent conversation with a person from an organization called the Inclusive Hive Community, the question was asked: What are the most common misconceptions about disability.  This question was asked to five or six of my fellow self-advocates including myself. I answered the question first with my typical response, that we are more than our disabilities, however, that was not the most eloquent answer I heard during the conversation. I believe the most eloquent and honest answer came from a friend of mine, Chatequa Pinkston. She said something to the effect (sorry if I don’t get the words exactly right Chatequa) that society doesn’t see disabled people as adults. We can accomplish great feats in the area of education and self-advocacy, but still, we are treated like children. I know that was not a direct quote but it is pretty damn close. If I understand Ms. Pinkston’s point clearly, it is that as individuals with “disabilities,” we are only disabled when people say we are. Ms. Pinkston is a published author, and founder of a non-profit along with many other accomplishments but still drives home the point that “disabled people” are not treated as people first, rather the focus is on our diagnosis first. 

Another member of the panel who happens to be my girlfriend brought up the idea of disability and family and no, in this case, I literally mean disability and starting a family. She argued that we can achieve great goals in every aspect of life but when we express our desire to start a family we are looked at as if we have three heads. In this case, even the ones we love sometimes say people with disabilities should be satisfied just being in a relationship and “playing the cute couple”; why should we want more. To those skeptics and naysayers, I submit the following argument: it is in human nature to carry on and produce offspring. Little kids not only give parents a chance to pass on what they know to the next generation they also give those around them the opportunity to realize what life is all about. 

These two arguments seem unrelated, but I use them to drive home the following point: it is time to stop treating men and women who are in their 30s and 40s as if they are incapable of living a “normal life”. We are living in 2023 not 1823. The archaic views about people with disabilities maturing slower than their abled-bodied counterparts are just not accurate. If we mature at a different speed than our able-bodied counterparts it is because we have not been given the opportunity to grow and develop without being coddled. Whether it is financially or otherwise, disabled people have the right to fail. It is through failure one grows into who they are supposed to be. The only way “disabled people” are going to grow is when people who love and care for them as well as society as a whole stop treating this entire group of people as if we are incapable of taking care of ourselves if we are given the right tools. 

It is time to end this practice, but I know it will take more than just this blog to change the minds and hearts of not only my loved ones but almost everyone else as well.

I know that was a lot to digest and this has been one of my more in-depth blogs of late. Always remember though no matter how heavy the subject matter gets, we as “disabled people” need not let others' perceptions or beliefs derail our overall happiness. 

Until next time, Your Friendly Neighborhood Super Advocate,

Jay

 

Come On America, You Can Do Better

Disclaimer: An article similar to this blog post will be published on FSA Central. 

The practice of paying disabled people below the minimum wage is still legal in 2023, and now It is time for that to change. 

The fact that it is legal to dehumanize and discriminate against people with disabilities this way in 2023 is ridiculous! We are America, we are supposed to be the country everyone looks to as an example but Europe treats its disabled population ten times better than we do. Why is it that just because someone is disabled whether physically, intellectually, or otherwise, it is okay to "throw them a bone"? Does that make society feel all that great?  I'm pretty sure Lady Liberty is crying in New York Harbor and Uncle Sam is disgusted. However, because disabled people have been marginalized in America for far too long and I'm afraid that without a disability revolution, this may never change. It is time for us to stop being good little boys and girls and sitting quietly in our chairs and looking good for the photos and live up to the disability motto “nothing about us without us” because no one will ever give us a seat at the front of “society’s bus” unless we take it.

Below is a call to action put out by the American Association of People with Disabilities (AAPD). As part of an effort to end this abysmal practice please visit AAPD.com and sign the petition to do your part to allow America to truly come into the 21st century. 

ACT NOW: End Subminimum Wages for Disabled Workers!

Support Ending the Practice of Paying Disabled Americans Subminimum Wages

Many disabled workers are being paid far below minimum wage, and it’s completely legal. These policies are based on the idea that disabled people are inherently less productive, and their work is less valuable. This is undeniably false. Disabled workers deserve a fair wage, and we need your help to put an end to the practice of paying disabled workers subminimum wages.  This discriminatory practice cannot continue.

Section 14(c) of the Fair Labor Standards Act allows employers to pay disabled American workers subminimum wages. Section 14(c) leaves room for employers to engage in discriminatory practices which include segregating disabled employees, cutting them off from community settings, and limiting their ability to receive opportunities for career advancement or development.

Research from the U.S. Commission on Civil Rights shows that between 2017 and 2018, the average wage of a person with a disability working under a 14(c) certificate was $3.34 per hour, less than half of the federal minimum wage. Many disabled workers made even less.

The time to act is NOW. The Department of Labor recently announced they will begin a comprehensive review of Section 14(c) to determine the future viability of the program.

Disabled people deserve dignity, and they deserve equal pay. I urge President Biden and Acting Secretary of Labor, Julie Su, to end the practice of paying disabled workers subminimum wages.

This is not the only way you can make a difference. AAPD is also holding a virtual meeting with lawmakers in Washington DC on November 15, 2023, from 5:30 PM Eastern until 7 PM Eastern. I urge you to attend this meeting if her schedule allows you to. We may not all be affected directly by this issue, but if you are connected to the disability community at all chances are you know someone who has been. Take this wonderful opportunity to not only navigate on behalf of the person you know by telling their story, but who knows one story may change things for all disabled people in the United States.

You can register for the next meeting, which will be held on November 15, 2023, from 5:30 PM Eastern until 7 PM Eastern. Registration is now open and will close on November 10, 2023 to registration link can be found on the US Department of Labor’s website: https://www.dol.gov/agencies/odep/14cEngagement

at the bottom of the page, you will see a button that says “registration link,” which is written in fairly small print, which may require those with visual challenges to magnify the webpage. For those who have additional access issues, I have included the AAPD accessibility support email below.

Accessibility support email: jdavidson@aapd.com all requests for accommodations based on disability must be submitted by November 6, 2023

Getting Back At It

Your friendly neighborhood super-advocate is finally back. It has been quite a while since I last posted as my loyal readers will have noticed. The last time I came to you I wrote a post on how to make the voice of the voiceless even louder. While the post got a large number of views, which I appreciate, I want to remind everyone that the best way to follow this blog is to make sure you’re following it on Blogspot. Occasionally I may not post a blog on the Facebook page.

Now that that’s out of the way I wanted to thank everyone for their overwhelming support not only in the past but recently as well. I was afraid that when I promised a new direction for the Voiceless Minority and did not stick with my five posts a week, my readership would suffer. Readership has done the exact opposite. I thank you for your support while I was not feeling well. While this post is on the shorter side, come back next week for in-depth investigations into a variety of topics. On Monday we will revisit one of the most popular topics on this blog recently. For those of you who remember several weeks ago, I did a blog on the Lego company. It specifically focused on adaptive Legos for the blind community. 

The response that that particular blog received has inspired my curiosity. That being said, Monday’s blog will discuss not only adaptive Legos but the concept of adaptive toys in general. Are there other toys out there for people with disabilities, i.e. toys for individuals with sensory issues or those with dexterity issues, or even toys that cater to a particular disability like the Legos do? Let me hear from you so that I can research and address them in future posts.

Until Monday, remember whatever life throws at you your attitude can help determine how the situation turns out as well as how far you go in life, aka your attitude. 

Getting Back To Basics: How Can I Spread The Message of The Voiceless Minority

Your friendly neighborhood super advocate is back with this week’s Spectacular Saturday post. I must begin by thanking you for your overwhelming support for Thursday’s 100th post. Your continued support gives me the motivation, and the ability to advocate even when I am not feeling up to it. I can’t thank you enough for that support. I come to you today with a call to action. The Voiceless Minority is growing. Soon we will no longer be voiceless. Our Facebook page has exploded ever since I started posting five days per week. The amount of views amazes me every day. I am inspired by the overwhelming number of comments for my recent post. Even though I respond to as many comments as possible, some of them are anonymous and not signed by their author. Let’s keep the conversation going and use the power of The Voiceless Minority to further strengthen the voice of the voiceless. There are several ways to keep the conversation going.

Firstly, if you see that I have replied to a comment you made, reply back to me, and let’s see how long we can keep the conversation going. If you are wondering how to see if I replied to your comment read the rest of this blog. It will not only show you how to follow the actual blog on blogger.com but also by following on Blogger you will never miss a post, in the case that I don’t get a chance to put it on the Facebook page. Secondly and perhaps most importantly, if the blog gains more followers, it will bring more attention to not only the blog that I write but also to the disability community and the issues that affect us on a daily basis. 

To follow the Voiceless Minority blog on Blogger follow the steps below

1. Sign in/Signup to Blogger.com which is free

2. For the “Choose Name For Blog” screen you can click the skip button in the bottom left corner if you don’t want to create a blog

3. If you skipped to the next screen click on the lines in the top left corner of your screen if it did not automatically bring you to the next screen.

4. Click the reading list on the left side of the page if it is not on that page already

5. Insert the link for The Voiceless Minority 

        https://thevoicelssminority.blogspot.com/

Before I sign off today, I just wanted to remind you, my loyal readers, that advocacy comes in many forms. One can advocate directly to policymakers whether they have a disability or not. One can read or write literature about disability. One can do the same with popular forms of entertainment. The most powerful form of advocacy is to start a conversation or keep it going by sharing publications or personal stories you may hear. Remember one voice can change the world but other people must hear that voice for anything to change. Enjoy the weekend and look forward to Monday’s blog about another disability-related issue but we will also remember the tragedy that took place 22 years ago in the United States known throughout the world as 9/11.

Till next time, 

Jay 

Breaking Down Barriers: The Architectural Barriers Act of 1968 and Its Significance to the Disability Community

Hello again, yes it’s me your friendly neighborhood super advocate. A warm welcome to all of my new readers who are checking out the blog for the first time. I want to welcome you to a friendly, engaging, informative, and sometimes funny look at anything and everything that has to do with disabilities and the disability community. To all my returning readers, welcome back. No matter which group you fall into, you’ve stumbled upon the Voiceless Minority on a very special day. Yes, it has finally happened after a decade of writing this blog - today marks the 100th post for the Voiceless Minority. I could not have done it without you. I started this blog as an outlet for my anger and the hurt I was feeling after being denied the opportunity to follow what I truly believed at the time was my passion. When I started this blog, I thought I wanted to be a high school history teacher and teach theater after school. I apparently didn’t know myself as well as I thought. They say that “things happen for a reason” or as I like to call it listening to God and actually paying attention to what He is saying by applying it to your life.

Since this post celebrates an important milestone in my advocacy, I felt that it would be fitting to write a post about a specific movement within disability history that recently celebrated its own 55th anniversary. Now that we’ve celebrated the success of The Voiceless Minority, it is time to get back to what this blog is all about, disability advocacy and the disability community as a whole. On August 12th we celebrated the Architectural Barriers Act and its impact on the disability community.  Even though it was passed 55 years ago it still has a great amount of impact on the lives of people with disabilities today. I hope you enjoy the rest of the blog. 

In 1968, amidst the civil rights movement and a wave of legislative changes, President Lyndon B. Johnson signed the Architectural Barriers Act (ABA) into law. This groundbreaking legislation was a pivotal moment in the history of disability rights in the United States. The ABA aimed to eliminate physical barriers that hindered access for individuals with disabilities in federally funded buildings and facilities, setting the stage for more inclusive and accessible spaces. In this blog post, we will delve into the significance of the Architectural Barriers Act of 1968 for the disability community and its lasting impact on the built environment.

Before the ABA, people with disabilities faced numerous challenges when trying to access public buildings, transportation, and facilities. Rampant architectural barriers such as stairs without ramps or elevators, narrow doorways, and inaccessible restrooms limited their mobility and independence. These barriers perpetuated discrimination and exclusion, making it difficult for individuals with disabilities to participate fully in public life.

Key Provisions of the ABA

The Architectural Barriers Act of 1968 addressed these issues head-on by requiring that all federally funded buildings and facilities be designed, constructed, and altered to be accessible To people with disabilities. Here are some of the key provisions that make the ABA an important piece of legislation:

1. Definition of Covered Buildings: The ABA applies to buildings and facilities designed, constructed, altered, or leased with federal funds. This includes a wide range of structures, from government offices and post offices to national parks and military bases.

2. Accessibility Standards: The ABA established specific accessibility standards and guidelines, ensuring that facilities would be designed to accommodate people with various types of disabilities. These standards laid the foundation for subsequent accessibility regulations, such as the Americans with Disabilities Act (ADA) of 1990.

3. Enforcement Mechanisms: The ABA empowered the U.S. Architectural and Transportation Barriers Compliance Board (often referred to as the "Access Board") to develop and maintain accessibility standards. Federal agencies were responsible for enforcing these standards and ensuring compliance in their projects.

Impact on the Disability Community

The Architectural Barriers Act of 1968 had a profound and lasting impact on the disability community for several reasons:

1. Increased Accessibility: The ABA led to the removal of many physical barriers in federally funded buildings, making them more accessible to people with disabilities. This change greatly improved the quality of life for individuals who previously faced significant limitations in their daily activities.

2. Trailblazing Legislation: The ABA set a precedent for disability rights legislation in the United States. It paved the way for subsequent laws like the ADA, which extended accessibility requirements to the private sector, further enhancing the rights and opportunities of individuals with disabilities.

3. Promotion of Inclusivity: By requiring accessible design in federally funded facilities, the ABA promoted a culture of inclusivity and equality. It sent a powerful message that all citizens, regardless of their abilities, have the right to access and participate in public life.

4. Advocacy and Awareness: The ABA spurred advocacy efforts within the disability community and raised awareness about the importance of accessible design. This activism contributed to the passage of subsequent legislation and the ongoing work to ensure equal access for all.

The Architectural Barriers Act of 1968 stands as a crucial milestone in the history of disability rights and accessibility in the United States. By addressing the physical barriers that hindered access to federally funded buildings and facilities, this legislation laid the foundation for a more inclusive society. It empowered the disability community, promoted equal rights, and set the stage for further advancements in accessibility. As we reflect on the legacy of the ABA, it is clear that its importance to the disability community cannot be overstated, and its impact continues to be felt today as we strive for a more inclusive and accessible future for all.

If you enjoyed this blog, please leave a comment either on this post or on our social media. Even if you don’t accept or agree with all the information presented above, we hope you keep coming back to continue to learn about the disability community. 

Till tomorrow, 

Jay

When Should I Start Teaching My Kids About the Different Types of Disabilities and Disabled People In General?

Your friendly neighborhood super advocate is back! In yesterday’s post, we discussed parenting with a disability for the third time. Since there was a great deal of interest in that blog post, I thought today would be the perfect time to deliver and talk about a topic that I mentioned at the end of last Friday’s blog post. 

Since I began blogging over a decade ago, I cannot count how many times I’ve heard the following question, “Since you write a lot about disability I was wondering, when is the right time or age for me as a parent to begin teaching my child about disabilities and disabled people in general?” For the longest time, I did not have a simple answer to this question. 

As a person with a disability, I have always believed that the earlier we expose children to a disability or any type of difference whether it be race, cultural background, disability, and/or language, this will foster acceptance, open-mindedness, and overall compassion. Children are impressionable if you teach them or if you raise them to be polite and nice to everyone then it is fair to assume they will not only grow up to be polite and respectful adults, but they will gain respect from others as well. 

In terms of teaching your child about the world of disability and the people who live in it, I recently came across an article that sums it up better than I can. An article on Today.com from July 28, 2020, entitled “How to teach children about disability, at every age,” puts it best. In the article, they use a quote from a woman by the name of Michelle Nario-Redmond. For those not familiar with Miss Nario-Redmond, she is a psychology professor and the author of the academic textbook "Ableism: The Causes and Consequences of Disability Prejudice".  She states in the article that when parents “yank the kids away from approaching a person with a visible disability, kids pick up on the fact that there's ‘something wrong,’ ‘something shameful,’ that they should avoid.” 

Rather than rehash the whole article I will include a link to it in this post. 

Miss Nario-Redmond and I believe that the earlier you teach not to fear or view people with disabilities as different, the sooner we will all learn that different is something to be celebrated, not scorned. 

Until tomorrow, your friendly neighborhood super advocate is signing off for the night.

Jay

Article and textbook mentioned above:

How to teach children about disability, at every age

Ableism: The Causes and Consequences of Disability Prejudice

Parenting Series: How One’s Perspective Can Change Given The Right Circumstances

Happy Taco Tuesday everyone! Thank you for the continued support you have shown over the past few weeks. Today will be the third in a series about parenting with a disability. I did not intend for this topic to be a series of blogs but the topic keeps finding relevance in my life and I hope to continue to impact others as well. 

I began writing about parenting with a disability a decade ago. The first blog was entitled "Who Says We Can't Have A Family". Who Says We Can't Have A Family  Two years later I wrote a second blog entitled “Parenthood & Me”. Parenthood & Me 

If you read both blogs, you may be a little confused. I sound like a rolling contradiction (: Both of these blogs were written while I was single as a pringle. In the first blog, I had a positive outlook on having a biological child. In the second blog, I said something to the effect of after thinking about it I would be doing a disservice to a young child, and I stated that I thought it would be more appropriate if I adopted an older child. Well, eight years have passed since I wrote the second blog and by some strange facet of the universe, or as I like to call it God’s Divine Plan, I am no longer single as a pringle. I have been lucky enough to capture a little space alien named Samantha “Elizabeth” Lebron. Her middle name is not actually Elizabeth. I just gave it to her because she looks just as beautiful as Elizabeth Taylor. (I know Samantha you hate your imposed middle name, but oh well I guess you will have to give me one soon.) Back to my point.  A lot has changed. I now have someone I want to build a life with and hopefully have a child or multiple children with. With that in mind my views on children haven’t changed; they have just gained some perspective. While I continue to believe adoption is still an option, and there a lot of kids out there who need a good home regardless of whether they are disabled or not, my desire to have biological children is stronger now than it has ever been. 

In closing in the first blog, I said that I did not know much about assistive technology for taking care of a child when you are a parent that has a disability. Since the purpose of this blog serves as a resource for everyone as well as to inform people about what living with a disability entails, I plan on researching assistive devices and equipment further and will be writing a fourth blog on parenting with a disability in the future.

Enjoy your Taco Tuesday and come back tomorrow for another interesting blog post from The Voiceless Minority.  

P.S. If anyone has any ideas for upcoming blog posts or wants to be a guest writer please leave a comment below or contact me via email at jasonhahr@gmail.com

Your Friendly Neighborhood Super Advocate, 

Jay  

Finding Your Faith Again

Happy Labor Day everyone! I hope you all had a great weekend and enjoyed what you read on the Voiceless Minority last week. I know in Friday’s post I said that the next blog would be about the topic of when the right time to teach your children about a disability is, however, there’s something that came up over the weekend that has made me decide to move that blog until later into the week.

I mentioned a little about how my faith journey was rekindled in Thursday’s post but as God often does He puts us right where we need to be and to hear the exact word we need to when we need it. On Sunday I was watching church online with Sam. The church is called The Crossing and is located in Tampa. I wish I could go to services in person but the online service will have to do for now.

As I have mentioned several times before I was raised Catholic and for the longest time I considered myself a recovering Catholic, not because I did not believe that Jesus was the Messiah, (I never stopped believing that) but because I was disenchanted with the practices of the Catholic church I felt, and this is just my own personal belief that the church did not resonate with me and they were concerned too much about making a profit. I have tried to get back into organized religion on one other occasion. I found a church where I was going to school in Pennsylvania that was nondenominational where I found a “home” for the first time. I did not feel like I was faking it. Unfortunately, due to circumstances that I have discussed in other blogs for this page, I chose to relocate with my parents and move to Florida.

Once I got to Florida you can say that the world or if you like the devil got into my head. I became really depressed, negative, and disconnected from God. At my lowest point, I was ready to forget all about the higher power or as I believe Jesus and why he put me here to live the life I live. That all changed about two months ago when my girlfriend Samantha started getting involved in her faith journey. She has gone down the path of faith since January but really hit her stride two months ago when she told me about the Crossing Church. She had been attending and she also told me they had services online. I’ve only attended two but immediately I was struck by the message that the minister was preaching that day, however, it wasn’t until last Sunday that I knew this was exactly what I’d been looking for. 

He did a Sermon on communication and relationships with others as well as going over the church’s principles he explained that in every church no matter what denomination as long as they believe in Jesus the core message is the same but he referred to each church as a part of the body of Christ. He simplified it by saying each church is like an organ in the body. They have their specific assignment meaning that the Crossing mission may be different than another church’s but they all work together to support the whole body. After explaining this he outlined the principles of the Crossing and related them back to specific passages in scripture. I will attach the message notes at the bottom of this blog so that if you choose to you can read them for yourself.

In closing, one’s faith journey might look different than someone else’s but God gives us exactly what we need to progress further in that journey even if we don’t know that we need it. No one is perfect and by no means do I consider myself perfect. We were all born into sin the only way we will find redemption is through Jesus.

Sorry, this post wasn’t strictly about people with disabilities but as I said earlier in this post God speaks through us, we just have to listen. Some people with disabilities may be down like I was but remember attitude is altitude and He will help you go further than anyone or anything.

Till tomorrow this has been your friendly neighborhood super advocate.

Jay

     

An Introduction To The Concept of Self-Determination and How It Can Be Applied In Your Life

Thank you for your overwhelming support of yesterday's blog about Braille Legos. Today's post will be a little bit different. Near the end of August, I was lucky enough to be a part of a team that gave a presentation on what is known as self-determination. For those of you who are reading this but were unable to attend the presentation I thought I would write a blog using easy-to-understand language about the concept.

Introduction:

In the journey towards creating an inclusive society, the Robert Wood Johnson Foundation’s principles of self-determination serve as strong examples of empowerment. These principles emphasize the significance of autonomy, choice, and personal growth for individuals with disabilities. Let’s delve into the essence of self-determination and explore its profound impact on the lives of people with disabilities.

Understanding Self-Determination: 

At its core, self-determination encompasses the idea that individuals with disabilities have the right to make choices about their own lives and actively participate in decisions that affect them. This concept champions the belief that everyone, regardless of ability, possesses the innate capability to lead a fulfilling life and pursue their aspirations.

Principle 1: Freedom to Make Choices:

The first principle underscores the freedom we have to make choices according to our preferences, interests, and values. This freedom extends beyond trivial decisions to encompass major life choices, such as education, career, relationships, and living arrangements. Recognizing and respecting these choices helps foster a sense of ownership over one’s life journey.

Principle 2: Authority Over Supports:

Having authority over the types of support and assistance we receive is pivotal for us. This principle acknowledges that each person’s needs and goals are unique, and thus, we should have the power to determine the kind of support that aligns with our aspirations. This approach shifts the focus from a “one size fits all” approach to a personalized, tailored support system. 

Principle 3: Control Over Resources:

Financial independence and control over resources play a significant role in self-determination. Individuals with disabilities should have access to information about available resources and the autonomy to manage their finances. This empowerment helps us plan for our futures and make informed decisions that positively impact our lives.

Principle 4: Opportunities to Learn and Grow:

Continuous learning and personal growth are fundamental to leading a self-determined life. This principle emphasizes providing individuals with disabilities equal opportunities for education, skill development, and vocational training. These avenues not only enhance our abilities but also amplify our voices and allow us to gain confidence and realize our full potential.

Principle 5: Participate in Community Life:

Inclusion within the community is a cornerstone of self-determination. Individuals with disabilities should have the chance to actively engage in social, recreational, and cultural activities, just like everyone else. This principle dismantles barriers and encourages the forging of meaningful connections to lead a rich and fulfilling life. It is only by self-growth and by developing who you are as a person, whether it is in the disability community or otherwise, that you can move onto the final principle which is all about giving back.

Principle 6: The Ability to Give Back to the Disability Community and Advocate for the Rights of People with Disabilities:

In my presentation, I only use 5 principles, but the sixth principle is otherwise known as confirmation. Once you are living the other five principles to the best of your ability it is your responsibility to give back and complete the circle of learning. As people with disabilities, we have a responsibility to learn about our rights and once we have done so, it is our job to pass that knowledge along to future generations of advocates. This could be done in a variety of ways through presentations like the one I gave at the conference, through blogs like this one, or even taking advantage of the times and posting videos on social media.

In conclusion, the principles discussed above if applied correctly, will help us on the path to personal empowerment. Once we empower ourselves and gain confidence in ourselves, we can push for societal change to break down barriers, challenge systematic and societal biases as well and create an environment no matter if you have a disability or not where your dreams and aspirations are honored and supported. If this occurs even in the long term, we will have built a more inclusive and compassionate society.

Thank you for your overwhelming support of this blog. I hope you have an enjoyable weekend. Now I know Monday is Labor Day but advocacy doesn't take holidays therefore neither does The Voiceless Minority. Come back on Monday to not only support the workers of America but start the back-to-school season with a blog that raises an important but not often asked question. "When is the right time to start teaching my kids about disabilities?"

Your Friendly Neighborhood Super Advocate, 
Jay

Lego Strives To Make Play Accessible for All: Braille Legos Soon To Be Available In The U.S

Mostly everyone, regardless of their age, is familiar with Legos. Some were obsessed with them as a child, owning every kit and every expansion set; however, some may be unfamiliar with what exactly a Lego is. According to their website, Legos are a series of interlocking plastic blocks that can be assembled to form buildings, characters, vehicles, and other objects.

 

The Lego company was founded by Ole Kirk Christiansen in 1949. Since Lego’s founding, the company has always been at the forefront of the latest trends, whether it’s a hit movie, TV show, or, more recently, the concept of inclusion and universal design.

 Words

You may ask, what is universal design? According to the University of Washington, universal design is the process of creating products accessible to people with a wide range of abilities, disabilities, and other characteristics. Now that we understand the universal design (UD) concept, we can apply it to a new product that the Lego company unveiled in the U.S. on September 1^st of this year. The new innovative product is a Braille Lego Kit. Once it hits the market this Friday, it will bring the world of Legos and basic education to children with visual impairments.

 

The Braille Legos are not a new concept. They are just new to the U.S. market. The idea was first introduced in the U.K. in 2020. The idea behind the UK products was to make them available in educational settings only. The original kits came with 300 pieces with markings corresponding to each Braille alphabet letter. These blocks were originally designed for children between the ages of one and four. However, the researchers quickly saw the product's potential with other groups.

 

After three years of perfecting the product, the Lego Braille blocks will officially go on sale in the US tomorrow. They will retail for approximately $89. This time, the kits will include 226 pieces with the Braille markings on one side and the English equivalent of either a letter or number on the other side so that those who are assisting can easily use the product.

 

In closing, there is no doubt that the steps the Lego company has taken to include a segment of the disability community should be commended. However, although this blog focused on individuals who either have low vision or are blind, I make it my mission to research whether there are other adaptive toys for other segments of the disability community. If anyone reading this can point me in the right direction, I ask that you either leave a comment on this blog with your contact information or email me at jasonhahr@gmail.com. Let’s all use the fourth principle of self-determination, which is responsibility, and remember that we all should give back whenever we can.

 

Thank you for reading this post. I hope you enjoyed it, along with the other recent posts on this blog. Don’t forget to come back tomorrow for a more comprehensive explanation of self-determination.

 

Your friendly neighborhood super advocate

 

Jay

Florida SAND Fellowship Year One: A Review of How My Advocacy Has Benefited From My Fellowship

Hello again everyone. I hope everyone enjoyed yesterday’s blog on adaptive cooking and cookware. As my fellowship is coming to the end of the contract for my first year tomorrow, I felt it would be appropriate to give a nod to not only Florida SAND but my colleagues and the staff who trained us throughout this past year to thank them for helping my passion for advocacy grow. 

I came into this fellowship at a weird time in my life. Before the fellowship, I had worked for Florida SAND as a per diem writer for their blog FSA Central. While this work kept the flame for disability advocacy alive and on life support, when I was presented with the opportunity to be a fellow, I immediately jumped at it. Thank you to Kelli Munn for the opportunity.  I would not be where I am today without your faith in me. However, my fellowship wasn’t as smooth of a journey as I had hoped. 

About a month into the fellowship, I began to take it for granted. I had an ego bigger than the state of Florida and I thought that I knew everything there was to know about self-advocacy; boy was I wrong! I quickly learned that there was more to this fellowship than just writing articles about people with disabilities. Thanks to the fellowship I would develop event planning skills and meet my best friend, although I did not know it at the time.  We spent the first few months of the fellowship planning a conference where we would teach a concept that I have spoken about before on this blog, “The Route To Self Determination”. At the time I did not realize how this conference would change my life forever. Along with my colleagues, Laura Lee-Minutello and Samantha Lebron we had to give a full-day presentation on the concepts of Route. It was both an eye-opening experience as well as a learning opportunity and as I’ve said before, it was where I dared to hit Samantha with the following cheesy line that would change my life forever.  

Hey, “would you be my scribe for the weekend?”. I don’t know why the hell she said yes but she did. I will not go into further detail about how we have built a relationship in this blog as it is not relevant to my main point. After that weekend I started to see that my passion for disability advocacy was not as strong as others were. Over the next six or seven months it would decline and eventually, in an unforeseen way, it would reach an all-time low. The fellowship quickly became something I took for granted. 

I was given so many opportunities to better the lives of other self-advocates but unfortunately, I did not take advantage of them. Granted, I spent some time dealing with health issues but I did not use my hospital stay to re-energize, instead, I would use it in a negative way and sadly become complacent. However, that all changed a few weeks ago. 

About four months ago we started planning this year’s conference where we would give a condensed version of the presentation we had given the year before. I tried to use this to remotivate myself but it wasn’t until I attended the conference and heard its keynote speaker Matthew Walzer that my attitude changed in a positive direction. Without retelling Matthew’s story, as I have mentioned in previous blogs, I will say that his speech changed my life and my overall outlook on not only my fellowship but my life in general. 

I now understand how things happen for a reason but at the same time, we cannot use negative events in our lives as excuses or crutches to explain away our laziness or lack of effort. Thanks to the fellowship and the speech I heard at the second conference, it became a part of my advocacy work and my enthusiasm has intensified one thousand percent. I now post on The Voiceless Minority anywhere from four to five times a week. This is significant because excluding the first two years in which I started the blog, I only posted on it sporadically. 

As a final thought, just because you start to feel overwhelmed or negative about a particular job or situation you are in, remember that you are the only one who can change the way you feel. Recently I wrote a blog on how attitude is altitude, and it is this principle that is most appropriate to end this blog. In other words, just because there was a period in time where I had negative feelings toward the program, this does not mean that I could not have chosen to deal with them positively.  Negativity is only a feeling; it is only as powerful as we allow it to be. Instead of letting the quality of my work show how I was feeling at the time, I believe God was testing me and unfortunately, I did not pass his test. But you learn from your mistakes and learned I have. 

Whatever you are facing, there is always a way to put a positive spin on it so that you come out of a situation better than before you encountered it. This writer’s humble opinion. Until tomorrow, stay strong. 

Jay

Finding Your Way Around The Kitchen: How Adaptive Utensils Make Cooking Accessible For All

Before I begin, I wanted to say thank you for your overwhelming support of my recent posts. I hope you enjoyed yesterday’s blog on how to have a healthy relationship. Now let’s take a detour and begin today’s post. 

The first thing I want to say is, Happy Taco Tuesday everyone! If you have not guessed this blog is going to be about food and how people with disabilities can be included in one of America’s favorite hobbies, the art of homemade cooking. I know everyone except the really brainy people, the ones who majored in math in college, and hated statistics but here comes one anyway.

According to a poll conducted on behalf of Hello Fresh nearly one-third of Americans still believe it is better to eat in than go out because the quality of food is better. In that same poll, it was reported that 69% of Americans cook on a regular basis, an estimated 10 meals per week. 

Some of you who are reading this may question the validity of this poll and may be wondering what exactly is Hello Fresh. According to their website, Hello Fresh is a meal-kit delivery service with four basic plans depending on your dietary and food preferences. 

If we consider the Hello Fresh poll to be accurate or close to it, then we can logically come to the conclusion that cooking is a highly enjoyable pastime in America. The question can be asked then, how do we make cooking accessible for all? 

Fear not, this blog will attempt to give you, the reader, tips and suggestions on how you can make any basic kitchen accessible for all. To begin, let’s look at why home appliances were created in the first place. I believe Appliance Journal puts it best, “Home appliances were designed to make our lives easier. The cool thing is appliances aren’t a one-size-fits-all all solution. Home appliances come in many different shapes and sizes, there’s something out there for everyone. Preparing meals from a wheelchair is possible with a wide selection of ADA-compliant appliances.” The article goes on to further explain that ADA-compliant kitchens are becoming more popular for three essential reasons. 

1. There has been a significant increase in multigenerational households.

2. People with disabilities are now aging in place rather than going to a facility or an institution. 

3. There has been an increase in the belief that society should be more inclusive for all.

An article written in 2021 by Hadriana Lowenkron reinforces the idea that universal design not only benefits people with disabilities but society as well. 

Let’s look more at the above-mentioned journal. The Appliance Journal has comprised a list of accessible kitchen items that I believe will benefit everyone. 

The first thing they discussed was the height of the kitchen counters. They pointed out that most kitchen counters are 36 inches. They then mentioned how a universally designed home or residence typically has 34 inch countertops. This is useful for somebody like myself because my wheelchair would be able to fit under the counter more easily. After talking about the height of counters the next logical discussion would be to talk about some accessible appliances.

Rather than just regurgitate what the article said about these appliances, I have linked an article here:

https://www.ajmadison.com/learn/appliances/buying-guide/the-best-wheelchair-accessible-kitchen-appliances/

Once you have made your kitchen accessible you can take the next step to make cooking accessible for all. Now we will focus on some adaptive cookware and utensils that may be useful in the actual cooking process. 

The cooking process is fun for most people and if you have a disability, it can be as well. In doing research for this blog, I not only learned about adaptive spoons and silverware as well as straws which I already know a little about, but I also learned about cool utensils such as self-opening kitchen shears ie, scissors for cutting food for when you are preparing it. There is a whole slew of utensils I found on the website below.

https://www.thewrightstuff.com/adapted-kitchen-aids.html. 

In closing, cooking is not only a way to stay healthy, but it can be very therapeutic and relaxing, and given the right equipment, people with disabilities can now cook just like, and dare I say it, sometimes even better than their able-bodied counterparts. 

Well, dinner is done so I am about to go enjoy some of my favorite food, as today is Taco Tuesday!

Your Friendly Neighborhood Super Advocate,

Jay

How To Have a Healthy and Long Lasting Relationship With Your Significant Other

Hello again, I hope that everyone who is reading this had a great weekend and enjoyed the posts from last week. 

On Friday, I wrote about privacy and setting boundaries when you have a disability. This post will examine boundaries also but this time from a different angle. In this piece, we will look at the idea that some people with disabilities tend to rarely find themselves in long-term relationships, because of their inexperience with romantic relationships sometimes they end up unknowingly losing themselves in the relationship and neglecting other parts of their life.  This piece will provide some helpful tips to ensure that any romantic relationship you have as well as the other relationships in your life are balanced.  

Anyone who either knows me or reads this blog regularly will be aware of the fact that I am now in a relationship with a little alien by the name of Samantha. What you may not know is Samantha is the first disabled person I have dated and my first long-term relationship since I was 18. My previous relationship lasted a few months so some might not even call it a long-term relationship. Either way, my relationship with Sam is the longest relationship I have had.  We have only been dating for a little over a year but it has been a wild ride in a very good way. I believe until recently we were still in the honeymoon phase, or at least I was.  This is not to say that we are still not learning about each other and growing together as a couple. 

For the first 13 months or so of our relationship, we would call each other every time we got a break in our day, and this was immensely enjoyable but for my part, it eventually turned into a routine rather than a vibrant conversation with someone I love where we had things to share with each other. That all changed after a conversation a couple months ago. 

One night instead of being nerds and reading the fourth Harry Potter which we have been doing for months…will we ever finish it? I’m hoping so but I will let you know when we do. Anyway, back to my point. One night the topic of our relationship came up. As I said on Friday, when you have people constantly around you, they observe certain things even if you do not know it or want them to. In our conversation, it came out that people in our lives were making comments about our relationship, and at the time I thought they were unfounded. However, looking back, maybe these comments were wiser than I realized. To summarize, many people said we both, but for the most part, I had changed. Upon hearing these comments, I immediately jumped the gun and reacted negatively. 

According to some, they felt that I was consumed with Sam. After taking a breath, Sam calmed me down. She made me realize that perhaps because I have not been in a long-term relationship I was going in full throttle, perhaps even a little too much. It’s funny how people closest to you give the best advice but they are the last ones we listen to. Anyway, as a result of that conversation Sam and I now talk once or twice a day so that we have something to talk about at the end of the day.

I found that our conversations were richer and not as forced as they were when we talked constantly. I am thankful for that. An added benefit of the change in communication style between the two of us is my personal growth. 

I am now developing better relationships with close friends, taking time for family and caregivers, and even getting back in touch with my spiritual side. I was raised Catholic but have drifted away from the Christian church, or for that matter, religion in general. Since I have been in a relationship with my alien, my faith has been reawakened, and I am slowly building upon it. For that, I must thank Sam. Even though I have been surrounded by religion my entire life, when you are forced or constantly reminded to find faith you quit looking for it but when faith finds you this is truly the way a relationship with God is supposed to develop. 

Along with my faith journey, since I have changed the communication style in my relationship, I have paid more attention to the opportunities life is providing me. Recently I have found a new passion for self-advocacy and as I mentioned last week, I have found my true purpose in life. On that topic, my sister pointed out to me that something I said in my blog post last Tuesday might have been misunderstood. 

In the blog, I wrote last Tuesday I mentioned it is my new passion to obtain a law degree in public policy and become a civil rights/public policy attorney. After talking to my sister, I realized that it may have sounded as if I was going to immediately pursue that goal and forget about everything else. The opposite is true. That is my end goal. For those who are curious to know I have a plan of action to get me to that eventual goal. In short, next March I intend to apply for a six-month program in which I will learn how to advocate for different legislative policies that affect people with disabilities in depth. Hopefully, this program will provide me with a foundation for my future goals.

In conclusion, in order to have a healthy fruitful, and most of all lasting relationship with a significant other I have learned that there is one key factor. This simply comes down to personal growth i.e.: having a life apart from your partner so that you can come together as a couple and enrich each other’s lives and grow together. 

I hope you have enjoyed this little bit of relationship advice from someone who is still learning. Having said that, please note the above blog and the advice given in it is just that. You don’t have to agree with what I said at all; if you do that’s great, if you don’t I respect that as well. Anyway, until tomorrow, I hope you have a good rest of the rest of your day.

Jay

When You Have a Disability, Is There Such a Thing As Privacy?

As humans, we crave interaction with others. Indeed. when we don’t have social interaction with other people, feelings of despair and loneliness can overwhelm us. However, in the age of social media have we gone too far? Every aspect of most people’s lives is available for consumption by others now. This may be a new concept to the majority of the world but for one segment of the population, I argue that a lack of privacy is not a new concept. Indeed, it may even be a bigger problem for people with disabilities than their able-bodied counterparts. 

Frequent readers of this blog know that I have a disability known as Cerebral Palsy. Cerebral Palsy, for my new readers, is a congenital disability that occurs at birth. It usually occurs during the delivery process; it is not genetic or at least there is no evidence that it is as of yet. There are many forms of Cerebral Palsy and it can affect people in a variety of ways. Some people with Cerebral Palsy have a slight limp when walking, others use a wheelchair for some things but are semi-self-sufficient. Finally, there are severe cases like mine, where the individual is confined to a wheelchair and requires physical assistance for most activities of daily living (ADLs). Cerebral Palsy does not only affect people physically. Indeed some, unlike myself are intellectually impaired. This is not to say those who are intellectually impaired live less of a life, I’m just recognizing the fact that I am not.

 I am aware of how involved other people are in my life, to put it bluntly: I can’t eat, drink, shower, or even use the toilet without the assistance of someone else. Hence the question in the title of this blog. Is there such a thing as privacy when you have a disability? I argue that when you have a disability it is up to you to demand privacy whenever possible. The rest of this post will hopefully provide you the reader, with a new understanding and perspective as to why I feel the way I do.

Before I go much further, let me address the elephant in the room that I know some of you are thinking about. When you first glanced at the title of the post you probably thought it was going to be primarily about sex and intimacy. Yes, that is part of it, but not all of it. I am blessed enough to have, if I may be so bold as to embarrass her for a second, an extremely gorgeous and sexy little alien girlfriend. I count my blessings every day. I consider it a blessing that she not only puts up with my sarcasm and snarkiness but also my complete nerdiness as well as my overly emotional girly side at times. However, this is not the only way in which I am blessed; I also consider it a blessing that I even have a girlfriend. I am aware that most people with disabilities (I know I’m making a sweeping generalization) are single for one reason or another. Some of it is by choice but I believe, and now here comes the annoying opinion again, that most people with disabilities are single because most of the world sees people with disabilities as undatable. This is coming from experience. Yes, even someone with a disability like mine can be guilty of this type of thinking.

Now that I am done doting on and embarrassing my girlfriend, let me get back to my main point about intimacy, sex, and privacy. Some parents who read this next part may not agree with it because they may have a different view on physical intimacy than I do. You have that right and if you choose to, please skip over this part of the post and move on to the non-intimacy section of the article. I believe in every relationship whether it is one that is just beginning or one that spans multiple decades, there is a need and desire for intimacy both emotional, spiritual, and physical. When you have a disability, however, that may look different than the “norm”.  When you have people all around you 24/7 or close to it, it is nearly impossible to have a “private” conversation even if you put in headphones and talk on the phone or video chat while you are apart, or when you are together shutting the door, problems still arise. 

Caregivers or support personnel or whatever you choose to call them are always around and walls are only so thin. Whether you are having a normal conversation or a more risqué one, unfortunately, whether they intend to or not, other people will overhear your conversation. That being said, it is common for all of us disabled or otherwise, whether we comment or not, to form judgments about what we hear and fill in the missing pieces. 

If that wasn’t bad enough, say a couple reaches that stage where they are ready for physical intimacy and they require caregivers, another question arises. How to involve or not involve help? Everyone deserves physical intimacy at some point in their lives, the question is what do you do when you can’t do certain things on your own? Do you not do them?  It is a sticky question that I don’t think many people are asking. “That dreaded opinion again”. Perhaps the reason they don’t ask such questions is because they don’t see disabled individuals as “capable” of being physically intimate. 

Anyway, moving on from the uncomfortable section of this post. As I said earlier, privacy is much more involved than just privacy in a relationship. How does one maintain their dignity if they are “exposing themselves” and every detail of their lives to caregivers or family members? There are some in my life who have recently said to me that there is no such thing as privacy when you have a disability. It took me a while, but I have come to partially agree with them. I argue that even though one may have family or caregivers extremely involved in their lives, it falls on the person with the disability to create boundaries. This could be something as simple as asking the people in your life to announce their presence in some way; knock on the door before they enter the room or give a verbal signal. Finally, another example of a boundary could be not having people speak for you when you have a disability as they often do (these are only two examples of many).

In conclusion, I believe that privacy is relative when you have a disability. Some aspects of your physical care cannot possibly remain private, but there are aspects of your life whereby taking the proper initiative the person with the disability can maintain or restore some of their privacy. 

Anyway, this has been a long blog and before I overdo it and lose the impact of what you have read, I will say good day. I hope you have enjoyed not only this blog but the other blogs you have read this week. More to come on Monday.

One Self-Advocate’s Journey To Redefine the Shoe Industry for People With Disabilities Reinforces a Point That My Dad Has Been Preaching for Years

In Tuesday’s blog post, I talked about a speech I heard this past weekend from a young man by the name of Matthew Walzer. His speech came at a perfect time in my life. As I said in the blog Tuesday, until this past weekend I had been lost and in a sort of never-ending fog. Since Matthew’s story impacted me so much, I thought I would share it and its similarity to a point my dad has been trying to get both me and my sister to appreciate for years. By the end of this piece, you will not only understand the great wisdom of my dad but also you will hopefully appreciate the tenacity Matthew showed in his effort to redefine sneakers for people with disabilities. In short, by the end of this piece, you will understand why I believe in the saying, “Attitude is altitude”. 

Every good story must start with a problem that the protagonist must face. Only this time, Matthew Walzer wasn’t writing fiction. Matthew was born with Cerebral Palsy. While some with Cerebral Palsy are wheelchair bound like myself, Matthew can mostly dress himself. The only problem is up until he decided to change it at the age of 16, he had a problem tying his shoes. Matthew would have to ask his parents to help finish dressing him. Matthew was not satisfied with this. He had dreams of going to college but was worried about being embarrassed, and who wouldn’t be embarrassed, by having their parents tie their shoes in college. What was Matthew to do? 

Being proactive and a forward-thinking individual, Matthew wrote a letter to one of the largest shoemakers in the world. He wrote to Nike explaining his dilemma and after years of development, Nike would come out with a slip-on sneaker which they called FlyEase. Matthew may not have been aware of how his letter would change not only his life but the disability community as a whole, however, his impact is much more than just a shoe. Matthew displays a drive and tenacity that most people wish they had. 

When I heard Matthew tell his story this past weekend at the Florida SAND conference, I was immediately struck by two things. The first thought was holy shit this kid has balls. The second thought was I used to be like that. What the hell happened to that Jason? I used to live by the saying “Fear nothing, Regret less” but compared to Matthew I was falling short. As I said in Tuesday’s blog, Matthew has inspired me to change that, but he has also done what my dad has tried to do for what seems like a lifetime. 

Many years ago my dad told me to not let my disability hold me back from doing anything. At the time, he did not use the phrase attitude is altitude but clearly, that is what he meant. Matthew and my dad are both wise beyond their years. They both understand that our lives are ours to live. They only will be as good or as bad as we let them be. I know I am posting this on a blog related to disability, but Matthew’s point goes far beyond having a disability. Yes, he was born with a disability but besides the fact that he uses crutches to get around you wouldn’t know it. 

The attitude that Matthew and my dad and for the most part, I have, is not very common anymore. But given the state of the world in some people’s opinion, that might make sense. I argue that the negativity and pessimism that we see in a large part of society today regardless of disability, race, gender, or economic status, only produces negative outcomes. If we as a society think negatively, we will not be satisfied with how things turn out. 

In closing, perhaps the epidemic of depression and suicide as well as a feeling of not having a social identity can be simply attributed to the way one looks at life. But I could be wrong. After all, I’m just a 37-year-old Quad who has Cerebral Palsy. However, I believe that what I lack in the physical department, I make up for in common sense. Anyway, just food for thought.

Jay