Posts

How To Have a Healthy and Long Lasting Relationship With Your Significant Other

Hello again, I hope that everyone who is reading this had a great weekend and enjoyed the posts from last week.  On Friday, I wrote about privacy and setting boundaries when you have a disability. This post will examine boundaries also but this time from a different angle. In this piece, we will look at the idea that some people with disabilities tend to rarely find themselves in long-term relationships, because of their inexperience with romantic relationships sometimes they end up unknowingly losing themselves in the relationship and neglecting other parts of their life.  This piece will provide some helpful tips to ensure that any romantic relationship you have as well as the other relationships in your life are balanced.   Anyone who either knows me or reads this blog regularly will be aware of the fact that I am now in a relationship with a little alien by the name of Samantha. What you may not know is Samantha is the first disabled person I have dated and my fi...

When You Have a Disability, Is There Such a Thing As Privacy?

As humans, we crave interaction with others. Indeed. when we don’t have social interaction with other people, feelings of despair and loneliness can overwhelm us. However, in the age of social media have we gone too far? Every aspect of most people’s lives is available for consumption by others now. This may be a new concept to the majority of the world but for one segment of the population, I argue that a lack of privacy is not a new concept. Indeed, it may even be a bigger problem for people with disabilities than their able-bodied counterparts.  Frequent readers of this blog know that I have a disability known as Cerebral Palsy. Cerebral Palsy, for my new readers, is a congenital disability that occurs at birth. It usually occurs during the delivery process; it is not genetic or at least there is no evidence that it is as of yet. There are many forms of Cerebral Palsy and it can affect people in a variety of ways. Some people with Cerebral Palsy have a slight limp when walking, ...

One Self-Advocate’s Journey To Redefine the Shoe Industry for People With Disabilities Reinforces a Point That My Dad Has Been Preaching for Years

In Tuesday’s blog post, I talked about a speech I heard this past weekend from a young man by the name of Matthew Walzer. His speech came at a perfect time in my life. As I said in the blog Tuesday, until this past weekend I had been lost and in a sort of never-ending fog. Since Matthew’s story impacted me so much, I thought I would share it and its similarity to a point my dad has been trying to get both me and my sister to appreciate for years. By the end of this piece, you will not only understand the great wisdom of my dad but also you will hopefully appreciate the tenacity Matthew showed in his effort to redefine sneakers for people with disabilities. In short, by the end of this piece, you will understand why I believe in the saying, “Attitude is altitude”.  Every good story must start with a problem that the protagonist must face. Only this time, Matthew Walzer wasn’t writing fiction. Matthew was born with Cerebral Palsy. While some with Cerebral Palsy are wheelchair bound l...

The Power of Disability Advocacy: Making a Difference and Driving Change

I know I have written a lot about disability advocacy I felt it was time for a refresher/ beginner's guide for those who are reading this blog for the first time and do not know much about disability advocacy. I recommend you read this blog first and then sample my other pieces.  Disability advocacy is a formidable force that has the power to break down barriers, challenge stereotypes, and drive meaningful change in society. It serves as a catalyst for transforming attitudes, policies, and systems, ultimately creating a more inclusive and equitable world. In this blog post, we will explore the remarkable power of disability advocacy, highlighting how it makes a difference and drives change at individual, societal, and systemic levels. Empowering Individuals and Amplifying Voices: Disability advocacy provides individuals with disabilities a platform to be heard, acknowledged, and valued. It empowers them to advocate for their rights, express their needs and aspirations, and particip...

Florida SAND 2023 REUNITED CONFERENCE RE-ENERGIZES My passion and PROVIDES much needed SPARK For Advocacy

They say things happen for a reason. They also say for those of us who are religious that God has a way of providing exactly what you need when you need it, even if you don’t know you need it. I am living proof that this statement is true. In the following piece, you will learn that one event, no matter how small or big, has the power to change you if you allow God to implement his plan in your life. For those of my readers who don't know, I am beginning the second year of my fellowship with an organization known as Florida Self-Advocates Network’D (FLORIDA SAND). They are a nonprofit, organization made up of 15 self-advocacy groups throughout the state. The organization aims to amplify the voices of individuals with Intellectual and Developmental Disabilities (IDD) on a local, state, and federal level.  According to their website, their mission is… FL SAND is an independent 501(c)(3) organization formed to expand the self-advocacy movement in Florida. It works through the support ...

The Art of The Casual Lie

Your friendly neighborhood super advocate is back! This time I have a question. Have we reached a point where it is okay to tell a “casual lie” rather than the truth? You may ask what made you pose the above question. The answer is sad but simple. During a recent follow-up appointment with my pain management doctor, I began talking to his nurse. I have been to the office several times in the last few months because my pain pump needed to be replaced. On this particular occasion, I found it easy to talk with the attending nurse for that day. For privacy purposes, I will not give her name here.  Throughout my appointment, we chatted easily. She asked me general questions about my education and other topics, and I did the same. As the appointment progressed, it eventually came out that I was a disability blogger. I told her about this blog and mentioned that we had a Facebook page. She seemed genuinely interested, so I invited her to like the page and add me on Facebook. Truth be told...

Disability Is A Mindset Not A Diagnosis

Your friendly neighborhood super advocate is back! Since I last posted a lot of things have happened in terms of disability related issues and content. This post is the first of several posts to come. They will discuss a wide variety of topics including dating and relationships as well as finances and the low expectations society still has for people with disabilities.  Today’s post will highlight a recent encounter that I had at Wal-Mart. The encounter reinforces the idea that there is still a narrow view of disability in society. Let me set the scene.   As I often do, I was shopping at my local Wal-Mart a couple weeks ago. Most of the time I go in to the store with my caregiver or I pick up the groceries I have preordered. On this day, I did not go in, instead I decided since I only had a few things to pick up I would have my caregiver run in for me. As most of you know, I currently live in Florida. The weather in Florida often fluctuates between warm and extremely hot ...