The Voiceless Minority

  Hi guys, it’s your friendly neighborhood super-advocate, Jay, back again with another blog post. I have written quite a few in the last month. I want to express my gratitude for your overwhelming support of not only my writing but, perhaps more significantly, I wish to thank you for your continued support of issues that affect the lives of people with disabilities. You constantly inspire me to come up with new content and have reassured me that this blog does make a difference.   Today, I thought it would be appropriate to write a post in honor of Disability Awareness Month. Anyone who has been following the blog as of late will remember that a few years ago, I wrote a piece for Florida Self Advocacy Central and reposted it here. The blog focused on an organization known as The Hive Inclusive Community in Tampa, Florida, which is currently set to open in late 2025. The mission of The Hive, according to their website, is “to foster inclusive communities where every member...

Recently Former FL SAND President Eddie Hall who is already a powerful advocate in Florida was given the opportunity to take his advocacy to a new level when he received a grant from the Self Advocacy Resource and Technical Assistance Center or as it is commonly known SARTAC. This piece will highlight how when presented with the opportunity Eddie took full advantage of it not only to further pursue his own interest in recreation but at the same time, he has furthered his lifelong passion to make the outdoors accessible for all.  I have known Eddie for several years now. We are both very involved in disability advocacy. Although I thought I knew Eddie I learned a great deal not only about his advocacy but on a deeper level I learned about what drives his passion for disability-related issues during an interview I conducted for a piece I was writing for Florida Self-Advocacy Central. At the beginning of the interview, Eddie explained why he became a disability advocate, to begin with...

This Christmas will mark thirty years since the passing of my mom’s dad, or the person I like to call my Pop-Pop. To be quite honest I've been lost in my thoughts for a few days now. Late last year I was presented with the opportunity to become a Florida SAND Fellow. The Florida SAND fellowship has allowed me not only to continue my writing which I have been neglecting for the last couple of years but equally as important, it has allowed me to strengthen my advocacy skills. There have been ups and downs throughout my fellowship but as they say, things happen when they are supposed to. As a result of my fellowship, I finally found the best friend I have been searching for my entire life. Nearly ten months ago on a dare from my caregiver, I approached my now girlfriend Samantha Lebron and started a conversation. I did not know it at the time, but God put me right where I needed to be.  For the longest time, I held a belief that I could never date someone in a wheelchair because of th...

Disability pioneer Judy Heumann passed away this past weekend. Since my blog focuses on disability related issues I would be doing you my readers a great disservice if I did not write a piece on the late Judy Heumann, without whom this blog may not even exist.  Judith ”Judy” Heumann was born on December 18th 1947 in Philadelphia and raised in Brooklyn. She contracted Polio at the age of two. Fortunately for her, her parents did not subscribe to the popular theory on people with disabilities at the time. When the doctors suggested she be institutionalized because there was “no way she will ever walk” her parents chose not to listen.  Miss Heumann began her advocacy work in the 70’s when she fought the New York board of education over the right to teach in a classroom. She would eventually win the battle and become the first teacher with a disability in New York. Her advocacy efforts would soon reach far beyond New York.  In 1975 Ed Roberts asked Judy to move to California ...

To all my regular readers I want to say welcome back and thank you for your continued support. To anyone reading this blog for the first time welcome, please make yourself comfortable and grab a seat or a parking space for your wheelchair and a beverage and enjoy what is to come. In January 2014 I wrote a blog entitled “Aide Care System; The Hurtful Loop Holes” I have included the link to this blog at the bottom of this piece. That piece discussed a crucial problem when it comes to aide care that people with disabilities still face in 2023, however one area it did not cover in great detail was the lack of funding for aide care waivers. The waiver goes by different names depending on the state you live in. I currently live in Florida. Here the waiver is known as the Home and Community-Based Services Waiver. The waiver in theory like all the other waivers started out with good intentions but to be quite honest good intentions don’t pay the bills. In my previous blog on the subject, I tal...

Recently I finished a book entitled “Rosemary: The Hidden Kennedy Daughter” by Kate Clifford Larson. I was turned on to the book by my girlfriend Samantha Lebron. She knows that I love history, especially political history. When I first began reading the book, I wasn’t sure what to expect. The Kennedy family has been written about extensively. I thought this would be another look at the Kennedy family through the lens of politics, and, to some extent, it was, but it was much more than just a book about politics. As I got deeper into the book, I realized the book was about something more. It was on a deeper level about the history of the treatment of people with disabilities in the United States. Although Rosemary Kennedy was born to one of the most affluent families of the 20th century, unbeknownst to her she would face prejudices not only from the outside world but even from some members of her own family. Without recounting the whole book which I highly recommend you should read, I w...

It has been a few months since my last blog. However, with it being a new year, what better time than now to hit the ground running with a new sense of purpose and passion? It has always fascinated me how humans can become so disenchanted with life that we reach extremely dark places. To be honest, that’s where I have been the last few months, although it may not seem that way to outsiders. Depression rears its head in the most positive and happy people. You may ask what do I have to be depressed about? To answer without unloading every single problem I face, let’s just say there are quite a few things about my life that would depress most people. How you overcome the difficult times you face defines you as a person. We often require the help and advice of our friends, colleagues, and family to reach the other side of that “dark place.” Lucky for me, I have an amazing group of people that make up the support team that helps me navigate through my “dark place.” Recently, I was having a ...